Hi everyone! Man, this is one campaign I wish I didn’t have to do. My heart is breaking as I type. Earlier this year, I was diagnosed with a rare movement disorder called MSA-C. That stands for Multiple System Atrophy, the Cerebellar type. Think Parkinson’s, but more aggressive. Let’s just say, the prognosis is not great. There is no cure, and there is very little treatment. I could go into more detail, but I trust you to get ChatGPT up and read about it. So here I am. It sucks, but we’re here to make the best of it.

There are a few clinical trials, but pretty few and far between, since it’s not that common. I’m finding that most of them won’t take me anyway, as I am too far along. regenerative medicine does offer hope.  This is where you come in. Would you throw 20 bucks in the bucket, that will allow me to get the care I need. There are some alternative therapies that are not covered by insurance.  The funds would allow me the chance to explore some of these therapies that are aimed at reducing symptoms and increasing quality of life.

You have all been so kind over the years. Please know that I love you all, whether you can afford to give or not. By the way, I have a new cell phone number which is [phone redacted]. If anybody wishes to call me, speech has been one of the systems affected, but I still manage. Above all, I hope this finds you well, and you are surrounded with love. You deserve that.