Verity's rare heart tumour surgery

Verity is booked in to the Boston Children's Hospital at the beginning of September.
This is thanks to each and every one of you, along with a wonderful charity who are so generously helping us.
We still have fundraising events coming up thanks to some special family and friends, this along with any further donations we hope will ensure we can give verity the best of the best that she so rightly deserves.
Thank you from the bottom of our hearts.

Our beautiful daughter Verity was born on the 25th January 2015 after a normal birth. She had always been a healthy, active child until she turned 2 years old.  
On the evening of the 21st February 2017, out of the blue, she experienced a life threatening heart arrhythmia known as ventricular tachycardia, which caused her heart to beat at 250bpm. Verity was nearly faced with being sedated in order to administer a shock to the heart but luckily intravenous medication stabilised her.

Two weeks later, an echo scan at the Brompton hospital revealed a large mass on her heart which, following a 3 hour MRI was later confirmed as an extremely rare cardiac tumour known as a Fibroma. This tumour causes a life threatening arrhythmia called ventricular tachycardia and can prove fatal.

Our lives have been turned upside down since the diagnosis. We now have to carry a defibrillator with us everywhere we go incase Verity's heart stops beating. We never know if today will be the day that we might lose her. Verity acts like a healthy, active 2 year old, but living with this condition means she could experience another episode of arrhythmia at any time without warning.

This type of tumour is incredibly rare, so rare that the NHS have only seen a handful of cases. The only treatment for this condition is an operation to remove the tumour, which unfortunately the NHS are unable to offer as they have no experience with this type of surgery.

Since the diagnosis we have researched this condition and are desperate to take Verity to the Boston Children's Hospital in America. They offer a cardiac tumour programme that has extensive experience of this condition and 100% success rate in removal of this type of tumour.
So far, 27 children have been operated on between 1990 and 2017 and all children were free of ventricular tachycardia following surgery.

We are hoping to raise enough funds to take Verity to Boston where the team there have already confirmed they can remove the tumour which will allow Verity to live a full and happy life.

Thank you for giving our little girl the chance of life.   #Verityshearttumour


Emily Davy 
Crawley, South East England, United Kingdom

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