<div><strong>Dear friends and supporters,</strong>
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<div><br />
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<div><strong>By now, you will likely have heard about the serious fire in September which destroyed a substantial area of the building where the NPUK Central Office is based. </strong>
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<div>We have since been given access to fully assess the damage, and it is as we feared - very little remains and it will undoubtedly be a huge effort to try to recover and recoup the resources, publications, equipment and other materials.
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<div>This disaster comes at a time when we are already struggling to keep afloat as a small charity. NPUK is the UK’s leading - and only - charity solely dedicated to Niemann-Pick diseases. We provide vital support, information, advocacy, and a sense of community to those affected by these devastating rare conditions. Losing our office, our base for so many years, and countless resources is a huge blow, but we are determined to carry on for the families who rely on us.
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<div>While we will be working with insurers, seeking legal advice, and creating a continuity plan, the immediate costs of disruption and recovery are far beyond what we can manage alone.
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<div>That’s why we are asking for your support. Every donation, big or small, will help us rebuild, recover vital equipment, and ensure we can continue supporting families affected by Niemann-Pick diseases.
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<div><br />
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<div>Thank you so much,
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<div><br />
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<div><em>John Lee Taggart</em>
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<div><br />
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<div><strong>NPUK Head of Communications</strong>
</div>

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Urgent Appeal: save NPUK after devastating fire

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Urgent Appeal: save NPUK after devastating fire

Still £1,847 to go. Help us build momentum.