Unaayudaparaantonella
Donation protected
Mi nombre es Antonella Gutiérrez tengo 06 años y vivo en Caracas, Venezuela, sin embargo, desde que tengo 1 año y medio comenzó mi proceso de enfermedad. Mi mamá Dayana me llevo al Hospital Domingo Luciani ( Caracas) por tener mucha dificultad para respirar, en ese momento me diagnosticaron Neumonía, los médicos que me atendieron se preocuparon mucho porque adicionalmente tenía 7 manchas marrones en mi cuerpo y mucha inflamación a nivel de mi cuello no obstante no lograron llegar a un diagnóstico preciso sino hasta Mayo del año pasado cuando entre a quirófano para la toma de una biopsia y colocación del traqueostomo , junto al resultado de la biopsia y tomografía fui diagnosticada con Neurofibromatosis tipo 1. En los últimos años he sido hospitalizada 8 veces aproximadamente. El año pasado fui hospitalizada en el mes de febrero y salí de alta en agosto y en octubre nuevamente debí ingresar al hospital hasta enero de este año. Actualmente producto del traqueostomo debo mantener una dieta preferiblemente blanda.
En lo que se refiere a mi tratamiento el indicado se llama IMATINIB o Glivec y aunque recibí la donación de parte del tratamiento me falta conseguir el restante, en el país es sumamente difícil y costoso poder adquirirlo, su precio sobrepasa los 1000$ por cada caja y aún me faltan según las indicaciones del médico tratante 6-7 meses más de tratamiento
Mi mama se llama Dayana Arocha
Mi medico tratante se llama Migbelia Acosta ( centro Ortopedico Podológico )
Mi psicologa Marielys Meneses
El dinero recaudado será destinado para cubrir los gastos de exámenes médicos los cuales debo realizarme al menos cada 15 dias, traslados a las consultas con el oncológo y cualquier otro especialista que sea necesario
My name is Antonella Gutiérrez I am 05 years old, however, since I am 1 year and a half ago my illness process began. My mother took me to the Domingo Luciani Hospital (Caracas-Venezuela) for having a lot of difficulty breathing, at that time I was diagnosed with pneumonia, the doctors who treated me worried a lot because in addition I had 7 brown spots on my body and a lot of inflammation at the level of My neck, however, did not reach an accurate diagnosis until May of last year when I entered the operating room for a biopsy and placement of the tracheostomy, together with the result of the biopsy and tomography I was diagnosed with Neurofibromatosis type 1. In the last I have been hospitalized 8 times approximately for years. Last year I was hospitalized in the month of February and left discharge in August and in October again I had to enter the hospital until January of this year. Currently a tracheostomy product I must maintain a preferably soft diet.
Regarding my treatment, the indicated one is called IMATINIB or Glivec and although I received the donation of part of the treatment I still need to obtain the rest, in the country it is extremely difficult and expensive to be able to acquire it, its price exceeds $ 1000 per box and I am still missing according to the indications of the treating doctor 6-7 more months of treatment
My mom is called Dayana Arocha
My treating doctor is called Migbelia Acosta (Podiatric Orthopedic Center)
My psychologist Marielys Meneses
En lo que se refiere a mi tratamiento el indicado se llama IMATINIB o Glivec y aunque recibí la donación de parte del tratamiento me falta conseguir el restante, en el país es sumamente difícil y costoso poder adquirirlo, su precio sobrepasa los 1000$ por cada caja y aún me faltan según las indicaciones del médico tratante 6-7 meses más de tratamiento
Mi mama se llama Dayana Arocha
Mi medico tratante se llama Migbelia Acosta ( centro Ortopedico Podológico )
Mi psicologa Marielys Meneses
El dinero recaudado será destinado para cubrir los gastos de exámenes médicos los cuales debo realizarme al menos cada 15 dias, traslados a las consultas con el oncológo y cualquier otro especialista que sea necesario
My name is Antonella Gutiérrez I am 05 years old, however, since I am 1 year and a half ago my illness process began. My mother took me to the Domingo Luciani Hospital (Caracas-Venezuela) for having a lot of difficulty breathing, at that time I was diagnosed with pneumonia, the doctors who treated me worried a lot because in addition I had 7 brown spots on my body and a lot of inflammation at the level of My neck, however, did not reach an accurate diagnosis until May of last year when I entered the operating room for a biopsy and placement of the tracheostomy, together with the result of the biopsy and tomography I was diagnosed with Neurofibromatosis type 1. In the last I have been hospitalized 8 times approximately for years. Last year I was hospitalized in the month of February and left discharge in August and in October again I had to enter the hospital until January of this year. Currently a tracheostomy product I must maintain a preferably soft diet.
Regarding my treatment, the indicated one is called IMATINIB or Glivec and although I received the donation of part of the treatment I still need to obtain the rest, in the country it is extremely difficult and expensive to be able to acquire it, its price exceeds $ 1000 per box and I am still missing according to the indications of the treating doctor 6-7 more months of treatment
My mom is called Dayana Arocha
My treating doctor is called Migbelia Acosta (Podiatric Orthopedic Center)
My psychologist Marielys Meneses
Organizer
Dayana Arocha
Organizer
Kissimmee, FL