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Una tela per Penelope Help for Penelope

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Buongiorno a tutti sono la mamma di Penelope una dolcissima bambina di 6 anni. Penelope e' affetta da una sindrome molto rara denominata Ehlers-Danlos. Ho capito, quando aveva 10 mesi, che qualcosa non andava. Dopo numerose visite le è stata diagnosticata la sindrome da lassità e ipotonia muscolare e legamentosa. Non mi sono scoraggiata, ho intrapreso un secondo lavoro per permetterle di effettuare un importante percorso fisioterapico. Ho speso oltre 8000 euro. Sono una mamma lavoratrice, ho due bambini, un marito che mi aiuta ma purtroppo la pandemia ha messo in difficoltà moltissimi settori professionali tra cui i nostri. Ho bisogno del vostro aiuto per le fisioterapie, la logopedia, le numerose visite cardiologiche. Penelope è monitorata costantemente, la sua muscolatura è molto debole. Da qualche mese e' subentrata una forma di incontinenza e un problema di lateralizzazione. I fondi da voi donati saranno unicamente utilizzati per le visite mediche. Aiutatemi affinché Penelope possa camminare e parlare sempre meglio. Grazie ❤️ Hello everyone, I'm Penelope's mother, a very sweet 5 year old girl. Penelope has a very rare syndrome called Ehlers-Danlos. I realized, when she was 10 months old, that something was wrong. After numerous visits, she was diagnosed with muscle and ligament laxity and hypotonia syndrome. I was not discouraged, I took a second job to allow her to carry out an important physiotherapy course. I spent over 8000 euros. I am a working mother, I have two children, a husband who helps me but unfortunately the pandemic has put many professional sectors in difficulty, including ours. I need your help with physiotherapy, speech therapy, the numerous cardiological visits. Penelope is constantly monitored, her muscles are very weak. For some months now she has had a form of incontinence and a lateralization problem. The funds you donate will only be used for medical examinations. Help me so that Penelope can walk and talk better and better. Thanks ❤️
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Donations 

  • Anonymous
    • €30 
    • 4 mos
  • Anonymous
    • €15 
    • 4 mos
  • Anonymous
    • €15 
    • 4 mos
  • Anonymous
    • €20 
    • 4 mos
  • Anonymous
    • €100 
    • 1 yr
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Organizer

Francesca Boccio
Organizer
Rome, Metropolitan City of Rome

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