<div>English below 
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<div>Hallo, mein Name ist Anna, ich schreibe diese Zeilen für meine Schwester Maja und meinen kleinen Neffen Elias.
</div>
<div>Elias ist grade einmal 5 Jahre alt, ein Kind das eigentlich spielen, lachen und unbeschwert aufwachsen sollte.
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<div>Mit 3 Jahren wurde bei Elias eine hypertrophe Kardiomyopathie diagnostiziert. In Elias seinem Fall bedeutet das, eine Herzmuskelerkrankung mit einer starken Vergrößerung des linken Vorhofs, einer auffälligen Form/Struktur der linken Herzkammer - das ganze führte zu einer Herzinsuffizienz mit erhöhtem Lungendruck. Sein Herz ist vergrößert, strukturell verändert und in seiner Pumpfunktion deutlich eingeschränkt.
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<div>Unzählige Krankenhausaufenthalte, Untersuchungen, neue Ärzte, neue Kliniken, ständige Infekte, Lungenentzündungen waren und sind hier Alltag.
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<div>Immer wieder die Frage: wie lange schafft sein kleines Herz das noch?
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<div>Und jetzt kam die Nachricht, vor der wir uns alle gefürchtet haben:
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<div>Elias benötigt dringend ein neues Herz und es kann nicht mehr lang gewartet werden.
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<div>In diesem Gesundheitszustand aber, kann sein Körper keine Transplantation überstehen. Elias wird in wenigen Wochen ein 'Berlin Heart' - ein künstliches Herzunterstützungssystem bekommen, um seinem kleinen Körper und vorallem seiner Lunge zu helfen, sich zu regenerieren. Erst wenn es der Lunge besser geht, kann Elias auf die Transplantationsliste.
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<div>Mit dem 'Berlin Heart' darf Elias nicht mehr zurück nach Hause, Elias wird ab dann dauerhaft - bis nach seiner Herztransplantation im Krankenhaus seinen Lebensmittelpunkt haben!
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<div>2 Stunden von seinem Zuhause entfernt.
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<div>Gesagt wurde uns, wir sollen uns auf ungefähr 1 Jahr einstellen! Auf 1 Jahr leben im Krankenhaus... wie stellt man sich darauf ein, wie bereitet man sich darauf vor ? Niemand kann die genaue Zeit voraussagen, denn niemand weiß wie Elias all das Bevorstehende vertragen wird.
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<div>Meine Schwester Maja, ist alleinerziehend und wird mit ihm in die Klinik ziehen - sie kann in dieser Zeit nicht mehr arbeiten, für wer weiß wie lange...
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<div>Ihre kleine 3 jährige Tochter wird hier bei uns bleiben, wir alle versuchen die Familie zusammenzuhalten und so oft wie möglich zwischen Zuhause und Krankenhaus zu pendeln. Auch damit Elias seine Familie spürt, damit er weiß, dass er nicht allein ist.
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<div>Aber nichts daran ist einfach.
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<div>Neben all der Angst um Elias kommt jetzt auch noch die finanzielle Belastung dazu: Miete, laufende Kosten, Fahrten zwischen Zuhause und Klinik, Versorgung - alles läuft weiter.
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<div>Und genau deshalb bitte ich Sie/euch um Hilfe.
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<div>Damit Maja sich keine Sorgen um ihre Existenz machen muss.
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<div>Damit Elias nicht allein durch diese schwere Zeit gehen muss.
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<div>Damit wir als Familie zusammenhalten können.
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<div>Mit eurer Unterstützung gebt ihr meiner Schwester die Möglichkeit, bei ihrem Sohn zu sein, ohne jeden Tag Angst zu haben, wie sie das alles bezahlen soll!
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<div>Mit eurer Spende unterstützt ihr:
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<div>- die Sicherung der laufenden Lebenshaltungskosten ( Miete etc. )
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<div>- Fahrtkosten zwischen Zuhause und Klinik
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<div>- die Versorgung der kleinen Schwester
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<div>- und gebt der kleinen Familie etwas finanzielle Sicherheit in dieser schweren Zeit
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<div>Auch das Teilen dieses Aufrufs bedeutet uns unglaublich viel!
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<div>Von Herzen danke für eure Unterstützung ❤️
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<div>*****
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<div>Hello, my name is Anna, and I am writing these lines for my sister Maja and my little nephew Elias.
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<div>Elias is only 5 years old, a child who should be playing, laughing, and growing up carefree.
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<div>At the age of 3, Elias was diagnosed with hypertrophic cardiomyopathy. In his case, this means a heart muscle disease with a severe enlargement of the left atrium, an abnormal shape/structure of the left ventricle – all of this has led to heart failure with increased pressure in the lungs. His heart is enlarged, structurally altered, and significantly impaired in its pumping function.
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<div>Countless hospital stays, examinations, new doctors, new clinics, constant infections, and pneumonia have been – and still are – part of everyday life here.
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<div>Again and again, the question arises: how much longer can his little heart keep going?
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<div>And now came the news we have all been fearing:
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<div>Elias urgently needs a new heart, and there is not much time left.
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<div>However, in his current condition, his body would not survive a transplant. In a few weeks, Elias will receive a “Berlin Heart” – an artificial heart support system – to help his small body, and especially his lungs, recover. Only once his lungs improve can Elias be placed on the transplant list.
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<div>With the “Berlin Heart,” Elias will no longer be allowed to return home. From that point on, his entire life will take place in the hospital – until after his heart transplant.
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<div>2 hours away from his home.
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<div>We were told to prepare for approximately one year. One year living in a hospital… how do you even prepare for that? No one can predict the exact time, because no one knows how Elias will cope with everything that lies ahead.
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<div>My sister Maja is a single mother and will move into the clinic with him – she will not be able to work during this time, for who knows how long…
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<div>Her little 3-year-old daughter will stay here with us. All of us are trying to keep the family together and travel back and forth between home and hospital as often as possible. Also so that Elias can feel his family, so that he knows he is not alone.
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<div>But none of this is easy.
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<div>Alongside all the fear for Elias, there is now also the financial burden: rent, ongoing expenses, travel between home and clinic, care – everything continues.
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<div>And that is exactly why I am asking you for help.
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<div>So that Maja does not have to worry about her livelihood.
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<div>So that Elias does not have to go through this difficult time alone.
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<div>So that we as a family can stay together.
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<div>With your support, you give my sister the opportunity to be with her son without having to worry every day about how she will pay for everything.
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<div>With your donation, you support:
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<div>securing ongoing living costs (rent, etc.)
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<div>travel costs between home and clinic
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<div>care for the little sister
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<div>and you give this small family some financial security during this difficult time
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<div>Even sharing this appeal means so much to us!
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<div>Thank you from the bottom of our hearts for your support ❤️
</div>

Anna Tauer-Harffer

Isabell Krampitz

Birthe Krack-Stoecker

Thomas Capello

Tobias Schubert

Anonymous

Katrin Greiner

Sabrina Tepper

andre hellmund

Sabiene Kielkowsky

Louis von Lützow

Angelika Keie

Elias, ein kleines Herz kämpft ums Überleben ❤️

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Elias, ein kleines Herz kämpft ums Überleben ❤️

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