After being flown to the Children's Hospital in Denver with her father the following morning, 3/23, sweet Scarlett was formally diagnosed with Epidermolysis Bullosa. Labs have been drawn and they will now wait 6-8 weeks for the results, which will then tell them the severity of this rare skin disorder.
EB is referred to as 'the worst disease you've never heard of'. With no cure and limited treatment options we know this is going to be a long, challenging road for the Karstens but we want them to know that they are not going through this alone. As the family and friends of Alyssa and Andrew, we are dedicated to caring for their needs, both prayerfully and financially.
Please click here to gain a better understanding of this disorder.
As you can imagine, this time spent in the hospital is not going to come without massive financial burdens. I do not know how long they will be in Denver, but while they are 4 hours away from home, bills still need to paid, pets still need to be fed, etc. This money will go to the Karstens to use as they see fit for their situation. The last thing we want them to worry about is how they're going to afford to keep their newborn as healthy as possible while keeping up with everything else.
- Tami Meers
- jesse phelps
- Sarah Soto
- Colette Brown
- Barbara Frontella
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