First, Christine and her family will be forever grateful for raising the money to purchase her van. This has been a great necessity to her life. Thank you to everyone for your extremely generous donations and prayers. Christine has been able to attend swim meets, awards assemblies, and doctors appointments that she would otherwise not been able to attend.
Christine Terlesky has been battling ALS now for over 4 years. Christine has progressed to the point where she needs 24 hour care. Her family has been able to help her in the evenings, but she is still in need of having care at all times. The medical bills and home care health bills have taken a toll on their family emotionally as well as financially.
After having watched my sister decline over the past few years I have realized that she has dealt with the changes of her body and to her life with grace and dignity. Christine has been robbed of moving her fingers first. Then she lost the ability to walk and move her legs. She then progressed to losing her arms. Now she is having trouble holding up her neck. And most recently she is also heartbreakingly beginning to lose her voice. However, although she has been robbed of so much she still wants to be a part of the world. She wants to be with her family. She wants to live as much as she can. Therefore, she is in need of a computer which will allow her to keep her voice. She wants to be able to utilize a computer communication device to be able to stay connected with others. She wants to return to Facebook and right now she can’t use it due to her paralysis. She also shared with me her goal to finish writing a novel she began a few years ago. With this eye detecting equipment she will be able to do these things.
It is is difficult to imagine that these items which are available are not readily accessible to everyone who has ALS. In order for Chris to live more independently, read, turn on and off the tv or lights, it would greatly improve her quality of life if she could have this device. Insurance does not cover this technology until she is on a ventilator. She would like to put that step off as long as possible.
Most importantly she needs this equipment to be able to remain the wonderful person that she is.
Not only is Christine one of the most kind , caring , and strong people of the world she is also one of the most grateful. Her genuine appreciation for the help and donations that she receives is tremendous. Her humor, her humanity, and her spirit have not been touched by this disease. We need to raise some more funds to allow her to have the equipment she needs to stay connected to the world. Thank you for your continuous support of Christine and her journey.
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