Carter’s Journey

Carter Demanelis

Shortly after taking her 4 older kids trick or treating on Halloween, Alicia’s water broke.
Carter was born at 37 weeks on November 1st 2020 to Alicia and Chris. Carter weighed 5lbs 13oz and 19in long. He was taken to the NICU within his first 2 hours of life and was put on a feeding tube and CPAP machine. He had swallowed fluid during his 15 minute trip through labor. And he had bruised his nose. Which they said was normal for a quick delivery. The next day around 7pm, the Dr and nurses said he was fine to be moved to his own room. Carter was 2 days old. About 9pm that night, he passed his first bloody stool. Dr said it was a Fissure and Alicia had to make Carter eat or he was going back to the NICU. Alicia tried everything she could think of to get him to eat. He would only take 10mls each of the 3 times she tried. Alicia began telling the Dr. and Nurses that his tummy hurt. He absolutely didn't want to eat... Alicia reached out to the nurses to help her feed Carter. Alicia is a mom of 4 little ones at home. She knows how to get them to eat. Carter was telling his Mommy that something was going wrong.
On Nov. 3, 2020 at 7am they took Carter back to the NICU. His stomach was turning red and he was sent for an xray. He had been diagnosed with NEC (Necrotising Enterocolitis) Plans were made to do surgery at 12pm on Nov 4th. Carters tiny body couldn't wait. They ended up calling Alicia and Chris at 1am saying he needed surgery NOW or he won't live to see the sunrise. So Alicia rushed to the hospital to kiss and tell her beautiful baby boy she loved him. That they all loved him. Alicia took a few pictures and told him that he better not make those the last pictures she got to take.
The anesthesiologist said Carter was VERY HIGH RISK. His platelets were extremely low and his white blood count wasn't good either. Soon they would be giving him blood as well as being intubated for his breathing. He made it though 2 emergency surgeries within 24 hours, removing 5 inches of dead intestine and half of his colon.
Carter started showing signs of getting better. So they lowered his morphine and took him off his 3 antibiotics, removed the Anderson tube, and took out the catheter. After several platelet transfusions he started to receive blood in general. His Picline was already in place feeding him TPN for nutrition. They were able to take him off the breathing machine. It was almost 3 weeks before Alicia could hold her little man for the first time.
Carter has had NEC twice and currently fighting it a third time. Seven days before Thanksgiving they started bottle feeding. He quickly went up 10mls every day. They lowered his TPN. Carter started vomiting. He wasn’t gaining weight. Thanksgiving day Alicia and Chris got the first bit good news. They were taking the picline out and stopping the TPN. Carter would just feed on bottles now. That evening NEC came back for the 3rd time with a vengeance. Carter beat it twice already but it’s come back to claim more of his little insides. Carters Drs hoped they caught it in time and Alicia and Chris were told he didn't need surgery at that time. Later they were told Carter has a cyst, hemorrhaging on the brain, and a heart murmur. No course of action was planned.
it is extremely rare for a full term baby to get NEC once, let alone have it come back twice more.
Alicia and Chris need our help. Carter may be transferred to another hospital in another state.
They have 4 older children at home. Chris works, but doesn’t get the opportunity to see Carter often.
They will still have bills to pay, ontop of transportation, food, hotels, babysitting etc….
Your generosity, in anyway, is greatly appreciated.


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Cheryl Beckett 
Morgantown, WV
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