Tylers Brain Tumor Journey

On Sunday 9/13/2020 Tyler began having seizures out of no where. I called 911 and he was taken to the hospital where they did tests all day trying to find out what had caused the seizure. His MRI showed a mass on the front of his brain. The next few days were spent running tests and trying to determine what this mass was. They began treating it as an infection.  Thr docs told us it was either and infection or tumor anf that we would start treatments while testing for infection. Midweek all tests came back and there was no infection. So the last option was to biopsy this mass and see what it was. Thursday 9/17/20 they did the brain biopsy and he was released from the hospital 9/18/20.  Finally on 10/10/20 we got the pathology results from the biopsy. He was diagnosed with Oligodendroglioma grade 2 at age 27.

Since 9/13/20 Tyler and I both have been unable to work due to his medical condition. Tylers tumor is located on the front left of his brain which effects his speech, personality, balance and vision among other things. He is currently taking anti seizure meds until they do the 2nd surgery to remove as much of the tumor as possible. I have not left his side since the morning this all started. His recovery from the biopsy was long and hard before he was remotely himself again. Some days the headaches are so excurciating he has to go to the ER. I have taken him to every doctors appointment and stayed with him everyday because some days are a struggle for him to be able to get out of bed. Everyday is getting better but we have a 2nd surgery and treatments still yet to come.

We are starting the process to see if he can qualify for any type of diasability or SSI but that can be a very long process before any money would start coming in. Bills are starting to pile up and will continue to do so as his next MRI isn't scheduled until January 6 2021 which means the 2nd surgery wont take place until sometime after that date. 

We are also in the process of seeking a 2nd opinion. Tyler is 28 years old and he has been diagnosed with a very rare brain tumor. We want to make sure he receives the best possible care he can from doctors with experience treating this tumor. That will likely mean traveling for future treatments but we will do whatever it takes to make sure he has the best shot at living a long life. 

Any donation helps. No matter how much or little. If you are unable to donate please consider sharing his story. 52106922_160432829443591_r.jpeg52106922_1604328310455584_r.jpeg52106922_1604328323170371_r.jpeg


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Miriah Grinstead 
Nicholasville, KY
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