He kept getting worse so his mom took him to his regular doctor who said he had pneumonia and gave him a zpac. He continued to worsen so he went to the hospital. After X-rays , tests, and concerned doctors, he was admitted. Test after test after test. He was then diagnosed with cystic fibrosis. Why didn’t all his specialists all through the years see this??????
His lung damage is severe due to not being treated from birth which is when most children are diagnosed with this disease. He is in intensive care and will be in the hospital on the strongest antibiotics possible to try and get the bacteria in his lungs under control as they are too far embedded to be killed. If they are able to get his lungs to work and his oxygen levels up, he will then be able to to do the “normal “ cystic fibrosis treatments which consist of breathing treatments in a vest and mask 3 times a day for the rest of his life, medications to deal with his pancreas and liver, and of course the continued problems with the erosion in his little esophagus and intestines from the ulcerative colitis complications. But he is a real trooper and is not complaining one bit. He makes the nurses laugh . He is trying so hard to do everything the doctors tell him so he can get well enough to be able to go home and continue his treatments there.
His mother has had to go on FMLA to stay with him so she will be unpaid for months or who knows how long. . The medical expenses will be enormous.
Any monies would go toward his medical expenses and help pay the bills while his mother is unpaid, allowing her to care for him. She had used up all her PTO days with all his earlier procedures. He will need a breathing machine and all his medicine and a lung vest. He will need care constantly for the remainder of his life.
Please help this precious young child live as well as is possible with this debilitating disease . Thank you so much for any help you can provide. I’m sure the need will be ongoing as the disease progresses.
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