Treatment to give sean extra time

sean was diagnosed with motor neurones disease March 4th 2020 with no cure for this life limiting awful illness since then his lost all ability to use his body can’t walk move his arms and is slowly losing his speech he has 3 young children ages 13 11 and 9 would love nothing more then to watch them grow have children get married it breaks our hearts to no there is nothing that can be done so we have been doing a lot of research into medication from different countries with a bit of help I have sourced information from a friend who knows someone with mnd they have been getting treatment from America New Jersey and he hasn’t got any worse and has had it 8 years now obviously it’s not a cure but could give sean that time in which a cure could be found or extra time to watch his children grow it’s not a cheap option and could cost anything from £500-£800 a month could be even more depending on what medication so If anyone could help we would would really appreciate it please share