<div>Thank you for visiting our GoFundMe page. We, in Scoil Chaitríona have set up this page to support our wonderful and much cherished teacher and friend Liz Ní Chléirigh, whose two gorgeous children Tommy and Grace have been diagnosed with a progressive, degenerative and life-limiting illness.
</div>

<div> 
</div>

<div>Tommy and Grace have Mitochondrial Disease. This is an extremely rare genetic condition with no known cure. It is caused by mutations in mitochondria, the tiny batteries in every cell of the body. They generate 90% of the energy that allows the cell to function. Put simply, the batteries in Tommy and Grace's cells are running out.
</div>

<div> 
</div>

<div>For Tommy and Grace, this means significant visual impairment, mobility issues, muscle weakness and fatigue. It also means that they spend a lot of time at medical appointments and therapies. For them, even a regular childhood illness like tummy bugs and colds can end in hospital admissions. This is the tough reality for the kids, our good friend Liz and her husband Kevin Dickson.
</div>

<div> 
</div>

<div>Despite this, and all the challenges they face, Tommy and Grace remain good-humoured and fun-loving and light up the lives of all around them. They love to play and go on adventures and, most of all, spend time with family and friends.
</div>

<div> 
</div>

<div>The story, in short...
</div>

<div> 
</div>

<div>Tommy and Grace live in Dublin with their mammy Liz and daddy Kevin.
</div>

<div> 
</div>

<div>Grace was an energetic, fun-loving, sometimes wild baby and developed normally, hitting all her milestones and winning the hearts of all around her.
</div>

<div> 
</div>

<div>Grace later developed a squint in her eye, and thanks to her loving, devoted parents, investigations began, of which there were plenty as more symptoms developed. These included issues surrounding her balance, fatigue, and, her much loved, contagious smile began to change and droop on one side.
</div>

<div> 
</div>

<div>After her battery of tests, including MRI’s, CT scans, blood tests and DNA tests, to name a few, Grace was diagnosed with a very rare mitochondrial disease on the 14th of December 2020. It’s a degenerative disease, there is no cure &amp; it is life-limiting.
</div>

<div> 
</div>

<div>Since her diagnosis, Grace has been fitted with a leg brace and has been provided with a wheelchair. This gives her the ability, although limited, to go outside and enjoy the world around her. Unfortunately, Liz and Kevin really have to take each day as it comes. Some days will see Grace enjoying her youth with a big smile on her face, other days will see her bed laden as her body struggles to fight off common bugs, flus and colds.
</div>

<div> 
</div>

<div>Grace's older brother Tommy, a funny and kind, boy, full of life, did have some food allergies and intolerances - nothing to raise too much concern. He later developed coordination difficulties, which health professionals believed to be dyspraxia. Although symptoms between Tommy and Grace were different, tests sadly revealed that Tommy also has mitochondria disease.
</div>

<div> 
</div>

<div>There are no words to describe Liz and Kevin’s heartbreak upon hearing this news. They had, in this moment, become the parents of 2 children with mitochondrial disease out of a total of 3 known cases in Ireland. We salute and admire Liz and Kevin for finding the strength to continue to fight for their children and do what is best for them. But they need our help.
</div>

<div> 
</div>

<div>Tommy, due to a curvature of his spine, has been fitted with a back brace since his diagnosis. This is to prevent further curvature, and hopefully correct some curvature that has already developed. It helps a little that the family had the back brace painted to match Tommy’s favourite superhero, Ironman. A stark reminder of just how young these children are and what they have to face.
</div>

<div> 
</div>

<div>The road ahead is one that no family deserves. Sadly, we don't know how many years Liz and Kevin have with their two precious children. Our aim is to simply support them and give them the opportunity to enjoy all the many fun adventures that lie ahead. Your donation will simply open doors to new experiences that this family deserves, bringing laughter, smiles and fun into their lives.
</div>

Daniel Merrick

Pauline Turley

Grace connor

Suzanne Casserly

Rita Murphy

Alan Murphy

Daithí Ó Murchú

Andy Crawford

Anonymous

Sarah Mahon

Tomás & Anna Ó Nualláin

Donagh Coleman

Rebbecca Ní Cheallacháin

Edel Cassidy

Colm O Ceallachain

Blathnaid Napuer

ELIZABETH OREILLY

Tommy and Grace's Adventure Fund

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

Eligible for Profile Share Badge

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

Support Comments Allowlist

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

checkout headers audience

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

isEligibleForProfileBadge

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.3.0 and above

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Tommy and Grace's Adventure Fund

Still €2,493 to go. Help us build momentum.