Thomas’s MS treatment journey

Hi my name is Pauline for those who know me asking for help doesn’t come easy. One of my twin boys Thomas was diagnosed with primary progressive MS. I’m doing this to help with on going expenses that Thomas his wife and kids will have while going to London for stem cell treatment. Here is his story… Thomas is a great son, brother, husband and dad. While having kids comes easy for some they had to go down the IVF route, they never complained about the expense. They were eventually blessed with a beautiful boy who’s now 4yrs. 2 yrs later a special little girl came , she came 8 weeks early and had to have open heart surgery, while awaiting to have that done through endless trips and nights in hospital . Thomas started having trouble with his sight. He also had trouble with his leg but put that down to sciatic nerve problem. By was he wrong…he or us never connected the dots of having a balance problem. Thomas was diagnosed by doctors in October 2020. This was after several visits to hospital and multiple tests such as Mri’s, lumbar puncture’s and bloods. He then had to choose which treatment to start with, he said to neurologist he hadn’t got time to be messing around as having two young kids, you pick he said I trust you. They chose to start with a trial drug called oerelizumab which involved 6 month infusions plus pills to swallow everyday. Since then he had other symptoms such as pins and needles heat pain, fatigue and foot drop. He developed a new active lesion which meant treatment wasn’t working. Thomas currently has 5 lesions on the brain, optic neuritis in the right eye and 90% of lesions on his spine. He has been accepted to undergo a autologous haematopoeitic stem cell transplant in university college London hospital. He has been approved treatment from the treatment abroad scheme with the HSE. Thomas is very grateful for that. The fundraising is to help with flight’s, accommodation for himself,wife and kids. Plus any other expense that pops up. He is going over and back a few times to London before Christmas for tests and chemotherapy. After Christmas will be back in London for about 8-12 weeks or after. Thank you for taking the time to read our story . Every donations helps and we appreciate everyone’s support giving while on this journey❤️