¡Todos con thomas!

Hola mi gente linda, mi nombre es Thomas Javier Quiñonez Arellano, soy venezolano, vivo en Mérida y tengo 13 meses de edad, recientemente me diagnosticaron el síndrome Chediak Higashi (Resumen al final), con la ayuda de Dios  y todos ustedes voy a iniciar el tratamiento que necesito y de esta manera más adelante proceder con un trasplante de médula ósea. Espero contar con la ayuda de todos aquellos que conozcan mi caso y puedan colaborar, y que difundan la información para poder contar con el apoyo de las fundaciones que existen en mi país.
Dios les pague de antemano . Comenzaré la lucha en nombre de Dios y voy a ser muy valiente
Sé que mi destino apunta a un futuro feliz

Ahora les explico un poco de que trata:
El síndrome de Chediak-Higashi es una enfermedad autosómica recesiva muy poco frecuente que afecta el sistema inmunitario provocando infecciones recurrentes de tipo piogénico cutáneas y respiratorias. Como tratamiento se utilizan antibióticos para tratar las infecciones, medicamentos antivirales, como el aciclovir y medicamentos quimioterapéuticos, asi como los trasplantes de médula ósea.
Mas acerca del síndrome Chediak Higashi

Mi informe medico:

Mi finalidad con este fondo requerido es poder viajar con mi mami para poder realizarme el transplante de medula osea lo antes posible.

¡Desde ya muchas gracias por todo su apoyo!

Thomas Quiñones.

Mantente informado de mi evolución en Mi Instagram.
ó puedes conctactarte via correo electronico con mis tios Yonder (arellanoyonderstevens@gmail.com) y Daniel (daniel20arellano@gmail.com).


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English

Hello, my name is Thomas Javier Quiñonez Arellano, I am Venezuelan, I live in Mérida and I am 13 months old, I have been diagnosed with Chediak Higashi syndrome (Summary at the end), with the help of God and you all I'm going to start the treatment I need and then be able to have a bone marrow transplant. I hope to have the help of all those who know my case and want to collaborate, and spread the information to be able to count on the support of the foundations that exist in my country.
God pay them in advance. I will begin the fight in the name of God and I will be very brave
I know my destiny points to a happy future

Now I explain to you a bit of what it is about:
Chediak-Higashi syndrome is a very rare autosomal recessive disease that affects the immune system, causing recurrent skin and respiratory pyogenic infections. As a treatment, antibiotics are used to treat infections, antiviral drugs, such as acyclovir and chemotherapy drugs, as well as bone marrow transplants.
More about Chediak Higashi syndrome

My medical report:

My purpose with this required fund is to be able to travel with my mom to perform the bone marrow transplant as soon as possible.

Thank you very much for all your support!

Thomas Quiñonez.

Stay informed of my evolution in My Instagram .
or you can contact me via email with my uncles Yonder (arellanoyonderstevens@gmail.com) and Daniel (daniel20arellano@gmail.com).


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Addicional information:

I am Yonder Arellano Méndez  and I am the administrator of the account "Todos con Thomas " I am from Mérida Venezuela, the funds are for my nephew Thomas Javier Quiñonez Arellano  to be able to transfer him to Argentina for his due bone marrow transplant, the funds will be spent on the trip and stay of thomas and his mother, also in his treatment and hospitalization. These funds will be withdrawn through the account of an aunt of thomas who lives in florida her name is Eliana Jose Moret Duran, and she is an American citizen, and live in the United States and this found will be administered by my person and my brother Jose Daniel Arellano.

Donations ()

  • Anonymous 
    • $40 
    • 18 mos
  • Erica Ramirez  
    • $20 
    • 19 mos
  • Maria Delgado 
    • $50 
    • 19 mos
  • Navielis Sojo 
    • $45 
    • 22 mos
  • Victor Pozo 
    • $5 
    • 25 mos
See all

Organizer and beneficiary

Yonder Stevens Arellano 
Organizer
Hialeah, FL
Eliana Duran 
Beneficiary
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