Therapy for Angelo

Our son Angelo was born with a tubulinopathy- an idiopathic mutation of one of the tubulin genes in his DNA. This gene is responsible for the development of many parts of the brain. His cerebellum, brainstem, midbrain, thalamus, corpus callosum, deep grain nuclei, and internal capusule did not form correctly, which has affected his ability to coordinate his movement very much like a child with cerebral palsy. (We just learned this after his latest MRI- we were initially told that he had Dandy-Walker Malformation, but images show that more parts of his brain are affected) He is 4 now and still cannot walk or talk. We have started a promising, innovative therapy with him- advanced biomechanical rehabilitation (ABR)- which is not covered by our insurance. We attend a training session every 6 months in Florida. Each session costs $3,500 as well as travel expenses. The therapy requires daily application, therfore I perform two hours of therapy on him every day-  it is a lot of work, but it is worth every minute. We have seen so much growth in him this year (more than in the first three years of his life). I have attached his most recent progress report and you can also see the amazing results of this therapy on youtube. We appreciate any donation and/or your prayers to help Angelo reach his full potential! Thank you- Randy and Kamala
ABR progress (youtube)
Also- if you know of anyone with a brain injury who has decreased motor developement/control, please look into ABR!
ABR information            ABR provider 

Donations

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  • Anonymous 
    • $100 
    • 65 mos
  • Anonymous 
    • $100 
    • 66 mos
  • Anonymous 
    • $100 
    • 67 mos
  • Anonymous 
    • $30 
    • 68 mos
  • Anonymous 
    • $100 
    • 68 mos
See all

Organizer

Kamala Benedietto 
Organizer
Berwick, LA
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