<div>I’m running <strong>33 marathons in 33 days, </strong>including<strong> </strong>one in every county in Ireland for families devastated by dementia, including my own.
</div>
<div><br />
</div>
<div>Funds raised will support the <strong>Alzheimer Society of Ireland</strong> and the work of our non-profit, the <strong>FTD Brothers Foundation</strong>.
</div>
<div><br />
</div>
<div>50% of all donations will be donated directly to the Alzheimer Society of Ireland.<strong> </strong>
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/98863525_1768333884342210_r." width="100%" />
<div><strong>Our Story</strong>
</div>
<div><br />
</div>
<div>We are Jordan and Cian Adams — two of three siblings who grew up in the small town of Redditch, Worcestershire, alongside our mum Geraldine, our dad Glenn, and our older sister Kennedy.
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/98863525_1768334059662533_r." width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>We had a happy childhood. Our parents gave us a strong start in life, and our mum was the heart of everything. She lived for big occasions — birthdays, Christmas, family gatherings — and made every moment feel special. She was loving, generous, full of life, and incredibly social. Mum was also deeply proud of her Irish roots. Her own parents were from the county borderlands between Longford and Leitrim, and she would often slip into an Irish accent when telling stories or chatting with friends. She was the kind of person you couldn’t help but notice when she walked into a room — always smiling, always talking, always lifting others.
</div>
<div><br />
</div>
<div>So when her personality began to change, it was impossible not to notice.
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/98863525_1768334076753698_r." width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>She became quieter. Less outgoing. Her mood dropped. Her memory began to fail. At first, we didn’t understand what was happening — but we knew something wasn’t right. Over time, those changes became more pronounced, and our dad began seeking medical help to find answers.
</div>
<div><br />
</div>
<div>What followed were months of uncertainty — repeated GP visits, consultant appointments, and several incorrect diagnoses, including depression, mental health issues, and even a silent stroke. Eventually, on 23rd June 2010, our mum was diagnosed with early-onset Frontotemporal Dementia (FTD).
</div>
<div><br />
</div>
<div>That evening, our dad had to tell us that our mum was terminally ill and that her condition would deteriorate over the next 6–10 years. At the time, Kennedy was 17, Jordan was 15, and Cian was just 9 years old.
</div>
<div><br />
</div>
<div>In the years that followed, we became carers for our mum as her condition progressed. That meant taking away her car keys when she could no longer safely drive but couldn’t remember why. Making sure she didn’t wander out of the house and become lost. Later, it meant helping to feed her, move her, and support her with the most basic daily tasks when she could no longer walk or speak.
</div>
<div><br />
</div>
<div>These are things no child should have to do for a parent — but when it’s someone you love, you do what you have to do.
</div>
<div><br />
</div>
<div>On 14th March 2016, our mum passed away peacefully at home, aged just 52.
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/98863525_1768334102365125_r." width="100%" />
<div><br />
</div>
<div><br />
</div>
<div><strong>The Irish Roots of Our Dementia</strong>
</div>
<div><br />
</div>
<div>Our connection to Ireland is not only emotional — it is medical.
</div>
<div><br />
</div>
<div>Our nan was one of six siblings, and heartbreakingly, four of those six developed familial Frontotemporal Dementia. Between those four siblings, there were 13 children — including our mum and our auntie. Of those 13 cousins, eight went on to develop and later pass away from FTD.
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/98863525_1768334123718382_r." width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>For decades, dementia quietly and relentlessly affected our family. Generation after generation lived through repeated loss without answers, explanations, or understanding of why this kept happening.
</div>
<div><br />
</div>
<div>It was through medical research in Ireland that the cause was finally identified.
</div>
<div><br />
</div>
<div>Researchers discovered that the dementia affecting our family is caused by a mutation in the MAPT gene — a genetic fault that leads to Frontotemporal Dementia. This mutation is inherited, meaning each child of a carrier has a 50% chance of inheriting it.
</div>
<div><br />
</div>
<div>For the first time, our family had clarity.
</div>
<div><br />
</div>
<div><strong>Breaking the Cycle</strong>
</div>
<div><br />
</div>
<div>After our mum’s passing, our sister Kennedy felt a burning need to know whether she would inherit the same illness. Through family connections in Ireland, she arranged an appointment at the Dublin Neurological Institute with Professor Tim Lynch, who had researched familial FTD within our family.
</div>
<div><br />
</div>
<div>Kennedy underwent research studies and genetic counselling before receiving her test result in 2018. She had inherited the normal copy of the gene from our dad — meaning she would not develop FTD.
</div>
<div><br />
</div>
<div>For the first time in years, we had good news.
</div>
<div><br />
</div>
<div>Kennedy was able to move forward, start a family, and live without the shadow we had all been carrying. Her bravery gave Jordan the courage to follow the same path. In September 2018, Jordan received his result: a carrier of the faulty MAPT gene, meaning he will develop the same form of dementia as our mum.
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/98863525_1768334448508718_r." width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>Jordan describes that diagnosis as a 'licence to live'. Knowing what lies ahead has sharpened every decision since — including the decision to ensure this disease is not passed on further. Tragically, earlier this year, Jordan and his partner Agnès learned during a pregnancy that their child had also inherited the faulty gene, and they were unable to continue. Their journey to start a family continues.
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/98863525_1768334183742479_r." width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>In February 2023, Cian also chose to be tested. He too is a carrier.
</div>
<div><br />
</div>
<div>That means we both will develop Frontotemporal Dementia, likely becoming symptomatic in our early 40s and losing our lives within a decade of diagnosis.
</div>
<div><br />
</div>
<div>Several of our cousins have also chosen to undergo genetic testing — something previous generations were never able to do. These decisions are deeply personal and incredibly difficult, but they represent a collective determination to end decades of silent heartbreak in our family.
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/98863525_1768334247778750_r." width="100%" />
<div><br />
</div>
<div><br />
</div>
<div><br />
</div>
<div><strong>A Licence to Live</strong>
</div>
<div><br />
</div>
<div>When we received our diagnoses, it could have been the end of hope.
</div>
<div><br />
</div>
<div>Instead, it became the beginning of purpose.
</div>
<div><br />
</div>
<div>We have chosen to use the time we have — while our minds are still here — to act. To educate. To raise awareness. And to try to change what the future looks like for families affected by dementia.
</div>
<div><br />
</div>
<div>That is why we run.
</div>
<div><br />
</div>
<div>That is why we speak publicly.
</div>
<div><br />
</div>
<div>And that is why, in 2024, we formally came together as <strong>The FTD Brothers</strong>.
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/98863525_1768334336886894_r." width="100%" />
<div><br />
</div>
<div><br />
</div>
<div>That year alone, through endurance challenges, storytelling, and community support, we raised over £250,000 for dementia research. It brought us closer to our lifetime mission:
</div>
<div><br />
</div>
<div>To raise £1 million for dementia research and support before dementia takes our lives too.
</div>
<div><br />
</div>
<div>We still have over £600,000 to go — and this challenge is the next step.
</div>
<div><br />
</div>
<div><br />
</div>
<div><strong>Why Ireland? Why This Challenge?</strong>
</div>
<div><br />
</div>
<div>This run — 32 marathons in 32 days across every county in Ireland — is deeply personal.
</div>
<div><br />
</div>
<div>Ireland is where crucial research into our family’s genetic dementia took place. It is where our mum’s roots lie. And it is where thousands of families are living with dementia right now.
</div>
<div><br />
</div>
<div>Dementia does not respect borders, counties, or communities. By running every county, we want to represent every family, every carer, and every person affected — north and south.
</div>
<div><br />
</div>
<div><strong>Our Mission Going Forward</strong>
</div>
<div><br />
</div>
<div><em>The FTD Brothers Foundation CIC</em><strong> </strong>was created to ensure our impact goes far beyond fundraising alone.
</div>
<div><br />
</div>
<div>We exist to:
</div>
<div><br />
</div>
<ul>
<li>Raise awareness of all forms of dementia
</li>
<li>Support families through community, education, and practical help
</li>
<li>Fund vital dementia research
</li>
<li>Advocate for earlier diagnosis and better support
</li>
<li>Work alongside existing dementia charities to strengthen, not duplicate, efforts
</li>
</ul>
<div><br />
</div>
<div>**50% of all funds raised through this campaign will be donated directly to the Alzheimer Society of Ireland**, supporting families living with dementia today. The remaining funds will help us continue this mission long into the future.
</div>
<div><br />
</div>
<div><br />
</div>
<div><strong>Why This Matters?</strong>
</div>
<div><br />
</div>
<div>We are running while our minds are still here.
</div>
<div><br />
</div>
<div>We are doing this for our mum.
</div>
<div>For our family.
</div>
<div>And for every family living with dementia.
</div>
<div><br />
</div>
<div>Thank you for reading.
</div>
<div>Thank you for supporting.
</div>
<div>And thank you for helping us turn urgency into impact.
</div>
<div><br />
</div>
<div><strong><em>Jordan &amp; Cian </em>- The FTD Brothers</strong>
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/98863525_1768334554671196_r." width="100%" />
<div><br />
</div>
<div><br />
</div>

kathryn clarke

Rich Cooke

Louise McDermott

clare cunningham

Anonymous

Kira Richmond

Philip Hamilton

Laura Tyler

Chloe Nash

Julie Moore

Elizabeth Boddy

Deirdre Westwood

Osita Nwankwo

claudine maguire

Sandra Hughes

Niamh O'Brien

Rachel Waby

33 Marathons. 33 Days. Ireland - Our Fight Against Dementia

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

33 Marathons. 33 Days. Ireland - Our Fight Against Dementia

Still £12,766 to go. Help us build momentum.