The Ashley Ames Alliance

Ashley Ames Macrory is fighting a very rare kidney disease called Dense Deposit Disease.  Because this disease is so rare, there are no FDA approved treatments for it.  Eculizumab is the most successful treatment on the market for DDD right now.  However, it is extremely expensive.  At about $20,000 per treatment, it was once described by Forbes as the most expensive drug in the world.   AA's doctor believes she needs Eculizumab to extend the life of her kidneys.  We would appreciate any help we could get in paying for this drug.  Thank you!

Please follow Ashley Ames' story on CaringBridge .