SCHER STRONG #ScherStrong #StrikeoutALS

Update ❤️ 3-16-19
Made it home from first day at ALS clinic. Absolutely exhausting and finding out no more physical therapy/occupational therapy. Really don’t want him walking, they want him conserve all his energy for things he needs to do. Especially conserving his energy for his diaphragm to help him breathe. Respiratory will be coming to the house to set up Mike with an at night respirator ( a trilogy). Not sure how it will work, but time will tell. Now comes the large expenses. Home health is not covered by insurance and is all out of pocket cost. This means no breaks for Matt or me during our 24/7 care for Mike. We need to have outside help and looking to raise money so Michael can have the care he needs as well as some breaks or sleep time for Matt and I. Please continue to share and donate to our go fund me page. God Bless! ❤️

Update❤️ 3-6-19

I learned something very sad today. I talked with the ALS Association and was told it doesn’t matter what type of insurance you have, soon Mike will have Medicare, home care is paid for all out of pocket. The only time they will pay for home care will be for therapy or if he needed skilled nursing for something like wound care. I will not be able to return to work because I am his primary caregiver with help from my 22 year old son Matt, who left school temporarily to help. Needing Matt was only temporary and I will need to hire someone to help me, I am not strong enough to care for him myself, and being awake 24 hours with no break is an option I can’t continue to do. This disease is horrible, it robs you of your ability to care for yourself or be independent. So not only does this disease take away your loved one in a horrific way, it leaves you in financial devastation during and after. I don’t know how people do it, unless they have a large family where family members can take shifts, something we do not have. Please continue to share. The cost of Mike’s medical equipment has not been covered by insurance and the larger items have not been available in the ALS loan closet.

Please share our GoFundMe page! Thank you everyone for your support!

#MikeStrong #ScherStrong
#ALSSucks #FightingALS

Update ❤️❤️

We are still trying to comprehend the diagnosis of ALS and what it means for today, tomorrow, and the future. With the disease, comes a lot of spasticity and fasciculations, which are incredibly painful and never seem to stop. Trying to find the right medications is tough, but we are on the right track. Mike continues to fight and be strong through all of this. Therapy is still twice a week and Mike pushes himself through all the aches, pains, and walls that stand before him. One day at a time.
With the advancement of the disease, he has outgrown many of his medical home supplies, and now needs more heavy duty, hospital quality equipment. Yesterday his hospital bed was delivered. Trying to make our front room a homey bedroom and comfortable. Room is large enough for his power wheelchair to sit right next to his bed, and when necessary the lift will fit also.

We are so overwhelmed by the support of friends, family, and the community our boys grew up in. We love our Lutz family! Please continue to share our page. Mike’s fight has just begun.

Update ❤️❤️

Many of you have read Michael's story below.  Today Mike finally had his EMG.  With many prayers and hopes, we did not get the outcome we had wished for.  Michael has been diagnosed with ALS (Amyotrophic Lateral Sclerosis) also known as Lou Gehrig's disease of which there are no known cures.  Trying to stay strong, Mike is a fighter.  Right now he will be continuing with his physical/occupational therapy at Tampa General Hospital Outpatient Rehabilitation.  He will be followed by the ALS  Clinic at USF.  Mike has a long battle ahead of him and with this diagnosis, the medical bills have started mounting, more home equipment and home healthcare are needed.  We are still saving for the Conversion Van as this is now a necessity to get Mike to and from therapy, doctor appointments, and to get out and enjoy time with friends and family.

We thank everyone for their prayers and donations.  Please continue to share.  Mike's fight has just begun. 

Michael's story.

As many of you may know, my father Michael Scher has been battling some serious medical issues. In August 2017, Mike had a laminectomy with fusion to decompress the nerves in his spine. Although he had improvement initially, in April 2018, he began to experience a rapid deterioration and atrophy of the muscles throughout his body. What started as walking with a cane, went to a walker, and now uses a power wheelchair.  

On December 14, 2018, Mike was admitted to Tampa General Hospital. On December 20th, he was moved into the In-Patient Rehab for Spinal Cord Injuries.  Numerous tests have been done and there are still more being performed. Upon his release, January 17th, he will be followed up by USF Neurology Group as they are still searching for a diagnosis. We have been told that my dad has a neuromuscular disease but do not have a definitive diagnosis of which of these it is. An EMG will be performed in February to find a definitive answer and hopefully begin a treatment to hold off the disease. He will continue his physical and occupational therapy 3 times a week at Tampa General Hospital Outpatient Rehab.  

When Mike and my mother Shari sat down with the case worker regarding their plans on bringing Michael home, they came to the conclusion that Michael needs 24 hour care and could not be left alone. My mom, Shari being his primary care giver, could no longer lift, move, or care for him on her own. The choices were find 24 hour care for Mike or have him go into a nursing home. Shari couldn’t bring herself to put him in a home; my brother Matthew, age 21, was asked to take a break from college and care for our father. A selfless sacrifice that no child should have to make, but provided what could be described as the ultimate gift, providing help to care for his father.  
Unfortunately, throughout this process, Michael was in between jobs due to his company being acquired and him looking for his next opportunity. Therefore, he did not have insurance.  He is currently on Medicaid which fights paying for care.

Mike, has always been a giver. He has always been the devoted husband, father, and always made sure he was there for others when help was needed. He always loved being at the baseball field watching my brother and I play ball, and being around friends and the community.  

Now Mike and our family are in need. He will be in an electric wheelchair that cannot be carried on the back of a car on a lift. We were told that we need a Conversion Van to transport Mike and his wheelchair. An expense too great right now along with the other medical expenses and equipment he will be needing for his care. We are asking for donations to cover the cost of buying a used conversion van, accessibility features needed to the house to assist with his challenges, and the medical expenses facing Michael and our family.


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Josh Scher 
Land O Lakes, FL
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