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Help Kurtis fight hydrocephalus

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Kurtis was born December 20th 2013 Unfortunately, labor was difficult, and he endured some complications. Kurtis was diagnosed with Hydrocephalus in 2013. When he was born He would get very sick, it seemed like he was vomiting almost every single night and sleeping most of the day. We were consistently being told that it was "just a virus" and that he was fine. Feb 2014 , Kurtis went in for a brain MRI for his genetic testing workup, but we were not expecting anything to actually be wrong with his brain. We got a call 2 days later from the neurology team, informing us that Kurtis has Hydrocephalus and needed to have brain surgery as soon as possible. In April of 2014, he had his first shunt placed at just 4 months old. Since then, Kurtis has had 1 additional brain surgeries, and many more hospital stays. Kurtis most recent surgery was Dec 2nd 2017 when he received his new shunt. We are keeping our fingers crossed that this one lasts much longer than the last, and hopefully we can stay out of the OR for a while! 2018 we found out he has a cyst on his right kidney and is on 8 different medications. We go back feb 2020 for sleep study they think he has sleep apnea and restless legs syndrome. Everybody that has met Kurtis will tell you all about his sense of humor, and how he is such a sweet little boy. Throughout everything that he has endured, he still smiles and laughs. He has never let anything dim his light, and that is why he is our hero.

Organizer

Shanon Neal
Organizer
Cambridge, OH

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