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Team Super Ty

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Hi, my name is Tyzaiah, but I like to be called Ty. I will be 11 years old on November 25th, 2018. On January 17th, 2014 when I was six years old, I was diagnosed with stage four Neuroblastoma cancer. I had been having some pains in my legs, and it hurt so bad that I couldn’t walk sometimes. My mom took me to the hospital many times, but the doctors kept telling her they didn't know what was wrong. The last time my mom took me to the emergency room was because I had a fever. My mom made the doctors take my blood to make sure everything was ok. When my results came back, the doctors said that I needed to get more tests. I stayed overnight and got my first ever MRI the next morning. The results would change my life forever. Neuroblastoma is a rare disease that none of us were ready for, including the nice men and women in white lab jackets.
My mom let me know that we will have to go to a different hospital to get some medicine because the doctors said I was sick. I was very sad because I didn't know what cancer was and I was scared. They told me I had to take an ambulance to the other hospital, but my mom was with me, so it made it better. When I got to the hospital, I met my doctor, Dr. Cara. I was not feeling good, I had a tumor and became a pin cushion as they figured out what was wrong with me. They finally said I needed surgery and medication that made me feel worse than cancer. I was scared to go to surgery, but my mom and dad made me feel better about it and reminded me that I was strong. I felt really bad when I woke up from my surgery, and then I had to have medicine, and that made me feel even worse.
I wasn't able to go to school like regular kids, and my mom could not work because she stayed with me in the hospital and made sure I went to all of my appointments. For over a year I got a lot of treatment, from chemotherapy to a bone marrow transplant, I even had radiation therapy. During all of that therapy, I lost a lot of weight and all of my hair. I continued to smile and have fun whenever I was not feeling bad. All of my family made sure I had fun whenever I could. I got to go on trips to the beach and all kinds of things. In October of 2015, my mom told me the great news! I was cancer free! I was so happy to be cancer free because I could finally be a normal kid and go to school with all of my friends. Also after that, my mom and dad decided to get back together, and that made me so happy.
In April of 2017, my arm started to bother me, my mom and dad took me to the emergency room because I couldn't move my arm and there was a huge bump on my shoulder. The doctors there did a scan of my arm and told my parents that my cancer had come back. I was very sad because I didn't know why this was happening to me. My parents took me to a new hospital that was for kids, and we started chemotherapy again. In November of 2017 my dad and mom split up, I was very confused and sad because I thought it was my fault. My mom assured me that it was not my fault at all and that sometimes these things happen. My mom tries to be strong, but I know she is struggling. She works from home but still has a hard time paying for things. I always ask her for things, and she never has any money. The other day my mom told me that our car had to go back to the dealership because she was not able to pay for it. It has been very hard to get back and forth to the hospital because it is 2 hours away, and I am scared I will get worse. I wish this would go away and that everything would be normal again. I am asking for any help that you can give us. Even if its just information, we would be more than grateful. Thank you for taking the time to read this, and if you are struggling like me, you are not alone.

Organizer

Colleen Jones
Organizer
Columbus, GA

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