We are asking for donations in order to help with baby Saylor's ever mounting medical bills. Little Saylor's journey is just beginning and it is anticipated that she will need ongoing surgery and therapy. We are very appreciative of your support in helping these new parents. Every donation, whether it be $1 or $1,000,000, is absolutely appreciated. All proceeds will be spent paying for her medical bills and ongoing medical needs.
On March 17, 2018, Saylor Blayne Smith was born to Ashley and her partner, Travis. They knew a few months prior that they would be facing some challenges. Ultrasounds and other tests had revealed some “abnormalities”. Saylor was loved and cherished by her parents before she even arrived, regardless of the hurdles they would face.
Ashley and Travis have been thrown into the fire of parenthood, medical bills, worry over their little lucky charm, taking care of all of Saylor’s needs, dealing with insurance, and knowing more doctors and specialties than they ever wanted to know.
No one can tell Saylor's story better than her mom. The following is Saylor's birth story from March 24, 2018:
"Today our little lucky charm turns 1 week old.
Saylor Blayne Smith entered this world on Saturday March 17th at 3:43 pm after 68 hours of labor and an unplanned C-Section.
During pregnancy we found out our rainbow baby was facing some fetal abnormalities due to a possible infection I caught or a genetic syndrome.
The months were long, but with the love and support of family and friends we made it through to the end.
Now that she is here we have learned a lot about our sweet girl. We are currently in the NICU and may be here for a while...
Saylor has a cleft palate making it difficult for her to feed normally and we are working with an occupational therapist to get her stronger at bottle feeding so we can get her off the tube. She will have her palate fixed between 10-12 months of age.
She was also born with a condition called micropthalmia, which causes her left eye to be significantly smaller than her right. She has had an eye exam and the doctor does not think she will have vision in that eye. Unfortunately the other eye also faces the issue of a coloboma, which may impair vision in that eye as well. It’s a wait and see situation as she grows.
She did not pass her hearing tests and will need to be evaluated once leaving the NICU to see where she stands on that. We are hoping it is just a build up of fluid preventing her from passing.
We also learned she has a bicuspid aortic valve in her heart but doctors do not think this will causes her any issues or hold her back in anyway. It may need repair, or may not, but it would be much later in life.
An MRI of her brain showed that all the structures are present, but are measuring slightly smaller than normal. The doctors say this may or may not play a role in her development and we will just have to wait and see.
Her infection testing came back negative so now we are awaiting genetic testing results.
We pray and hope that nothing else reveals itself, as we are at capacity for bad news.
Her daddy and I want to thank everyone for their kind words during this very difficult time. Our families have been instrumental in keeping us afloat as we navigate our new journey.
If you can, please pray for our girl.
We will update everyone again soon- hopefully with some positive news.
One things is for sure... she is a blessing and we are going to love her so hard no matter what.
If you find it in your heart to give, it will be greatly appreciated. Let's turn this mountain into a grain of sand!!
- Dulai Family
- Amber Lutanno
- Jean Barber
- Priscila L Meneses
- Ali Pourmemar
Organizer and beneficiary
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