Team Cascade El Tour 2018

THE MISSION

Cascade Foundation of Southern Arizona, Inc. is focused on providing a local support
system for the bleeding disorder community in Southern Arizona. That system includes
patient and family education, financial assistance, advocacy, community awareness,
access to quality healthcare, and medical research funding. We are dedicated to
enhancing the quality of life for patients with Hemophilia, von Willebrands, Thrombophilia,
and other bleeding disorders and their families.

WHO WE ARE

The Cascade Foundation of Southern Arizona, Inc., a 501(c)3
organization, was formed to provide a local network of resources for
the bleeding disorder community in Southern Arizona. We are proud
to work in collaboration with the Arizona Hemophilia Association in an
effort to provide a wide range of programs and services to the entire
state of Arizona.
The board of directors is comprised of local business professionals,
community leaders, and individuals personally affected (patients,
parents, and relatives) who volunteer their efforts so that your
generous donations can be utilized to fully fund the programs and
services we support in the community.
Our vision is to create a more cohesive community among patients
and families of those affected by all bleeding disorders. We
believe that fostering relationships with political leaders is essential
to maintaining access to quality healthcare for all patients in the
bleeding disorder community.
In addition our aim is to raise funds to support medical research efforts
in finding a cure and continuing education for patients and families.

WHY WE EXIST

People with bleeding disorders face life-long physical,
psychological, financial, and employment challenges.
Meeting these daily challenges depends on many issues
which may include the severity of their disorder, the quality,
and availability of medical care, level of insurance coverage
and ability to pay for care, and the strength of their personal
support networks.
Parents raising a child with a bleeding disorder have many
issues to address, such as health insurance coverage and
choosing the best treatments for the child. Additionally, parents
must learn how to deal with the child’s emotional responses
to living with a chronic health problem. Finally, parents must
help their children balance an active lifestyle as possible while
protecting his or her well-being.
For adults and children alike, the physical hardships and
limitations imposed by bleeding disorders often have emotional
and social impacts. Hospitalization, or a period of limited
mobility, is stressful as well as disruptive to school, work, and
family life. Planning one’s life around health concerns or making
job decisions based on access to adequate health insurance can
also have a profound personal and practical impact.
For individuals with bleeding disorders, and especially those with
hemophilia, treatment can be a tremendously heavy financial
burden. In fact, the treatment of hemophilia ranks among the
most expensive chronic diseases in the United States. New
technology has led to remarkable advances in improving the
safety of new blood products, but these technologies have
come at ever increasing costs.

WHAT WE DO

PROVIDE PATIENT SUPPORT ITEMS
Items that are essential for the prevention of
bleeding complications that cannot be provided
to patients through other sources which may
include: bicycle helmets, knee pads/supports,
orthotics, canes, walkers, wheelchairs, Medic Alert
bracelets, cold/pressure cuffs (Cryocuffs) to be
used to control bleeding.

FINANCIAL ASSISTANCE FOR
CAMP H.U.G. AND CAMP HONOR
Hemophilia Uniting Generations (H.U.G.) is a family
camp for patients and their families.
Camp HONOR is a children’s camp for patients
and their siblings.

PATIENT/FAMILY SUPPORT
Patient/family social support including group meetings,
emergency financial support, and recommendations/
referrals to other community agencies.

EDUCATION
Expansion of a multi-media hemophilia educational
program for patients, families, and health care providers.
Tutoring and in-home lesson programs help young
school children from falling behind.
Scholarship workshops assist adults to stay in
school and obtain technical or college degrees.
Scholarships recipients may be eligible to receive
financial assistance for up to four years for $2,000/
year or $1,000/semester.

HELP PROVIDE DENTAL CARE
Dental treatment for those patients without dental
insurance or without income to cover dental copays
and unable to afford dental care. We work
with local dental clinics to provide assessment and
cleanings to those who are unable to afford it.

WOMEN’S RETREAT
Education, support, and community building for the
female patients, care givers, and family members
of patients with bleeding disorders in the Southern
Arizona Community.

ADVOCACY
We work with the community to educate elected
officials and other government agencies about the
distinct needs of patients and families.

MEDICAL RESEARCH
We provide grant funding to local treatment centers
for medical research on the psycho/social effects
of patients living with chronic illnesses.