Teagan Romano Leukodystrophy Fund

Our Granddaughter Teagan Romano was diagnosed with Metachromatic Leukodystrophy (or MLD).  This is a very rare and serious disease, which you may find more information on this website: 

https://www.huntershope.org/ family-care/leukodystrophies/

It is urgent that funds begin to arrive as soon as possible, as time is of the essence.  Most children with this disease do not live past the age of 5 and she is currently just under 2 years of age.

Teagan may need experimental treatments to give her any hope of survival.  Our family is hoping to raise funds to put towards Teagan's future medical expenses.


Donations ()

  • Kati Cronenwett 
    • $50 
    • 12 d
  • Anonymous 
    • $50 
    • 14 d
  • Anonymous 
    • $25 
    • 15 d
  • Kendra Philp  
    • $100 
    • 16 d
  • Anonymous 
    • $30 
    • 16 d
See all

Organizer and beneficiary

Eric Johnson 
Colorado Springs, CO
Kelsey Donnelly 
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