Talon has recently been diagnosed with Neurological Lyme Disease. After nearly 3 years of desperately searching for answers along with visits to many different health professionals, his family is relieved to have a diagnosis and a new approach to treatment. However, due to longevity of the infection, the Lyme is now systemic and is acutely affecting his nervous system.
Lyme Disease is a vector born illness, meaning it is transmitted through the bite of an infected tick, mosquito, flea, mite or spider. It can also be transmitted via pets harboring infected fleas or ticks. Lyme disease is passed congenitally from mother to unborn child as well. There is currently no cure. Treatment to keep infection at bay is extremely expensive, painful, and NOT covered by insurance. Unfortunately, the CDC does not recognize Lyme Disease treatment as an insurance coverable medical condition, even though there are 1.5 times more cases of Lyme Disease than there are Breast Cancer each year.
For years, Talon’s mother, Tenaya, has diligently researched Talon’s ongoing symptoms. She has never given up on searching for the cause of Talon's struggles.
Talon's symptoms have become so debilitating that he can no longer attend school or participate in sports. Although, he has occasional good days, he is constantly battling excruciating migraine headaches, chronic fatigue, arthritis, neck pain, cognitive disorders, muscle control issues, brain inflammation (encephalitis), extreme digestive issues, severe food allergies/intolerances, weight loss, temperature regulation issues, chronic body pain and so on. He has been robbed of very important years of his childhood.
Talon is seeing Lyme Literate medical doctors in Seattle, Washington, working with holistic nutrition experts in Boulder, Colorado, and is set to head to the Mayo Clinic in Rochester, MN. Talon is to be seen by an amazing medical team in Washington every 3-5 months for treatment for at least the next 2 years.
Due to the incredible amount of travel expenses, and impending medical bills, Talon’s family is having to make drastic changes.
Please consider donating to help Talon on his journey to health and remission. His family is truly appreciative of any support, whether it’s sharing his story with others or financial.
Please help others by sharing this post, and by spreading awareness of a disease that is deserving of much more attention.
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