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TALIA'S DREAM AFTER HER NEW LEG

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TALIA'S DREAM AFTER HER NEW LEG IS TO BE ABLE TO BE LIKE A NORMAL KID AND GO TO THE THEME PARKS. DUE TO HAVING TO WAIT FOR THE NEW LEG AND NOT HAVING FUNDING TO BE ABLE TO DO SO.  HI MY NAME IS TALIA CAN YOU PLEASE READ MY STORY AND HELP ME ON MY WAY. THANK YOU EVERYONE. Talia was born at 36 weeks and 4 days she was diagnosed with congenital pseudarthrosis caused by neurofibromatosis which is nf1 basically another join in the tibia which the tibia became bent and about 10 months old Talia had rodding put in through the tibia to help straighten talia had 3 of them done. But that didn't work n as a result that it didn't work she had to have an amputation done so they took it at the ankle and not even a year later they said it hadn't work as well so they said that talia would need another amputation that they will go higher above the bend end result of that Talia now has to wear a prosthetic leg. so talia has gone through hell and back after surgery from surgery all from when she was 10 months old and now we're looking at another surgery because the leg is not doing what it should be and result of that they're talking about going above the knee and so now talia has Spurs and the bottom of her Stomp which has been causing somewhat pain talia goes back to the orthopaedic doctors every couple of months to have X-rays and medication checks she even Sees ots dietitians and other medical practice as result of this condition we have been told Talia can get tumours and cancer and she can go blind we are starting to notice a talia will need to wear glasses and talia has come a long way in that time and we're trying to raise money for her new leg and for her doctor's appointment her leg is 4500 and her Blade Runner is 7500 so by helping to do the his we might be able to raise some of what we need.  And here is s little about she has  Summary 1 Neurofibromatosis 1 (NF1), also called von Recklinghausen's disease, is a genetic disorder characterized by the development of multiple noncancerous (benign) tumors of nerves and skin (neurofibromas) and areas of abnormal skin color (pigmentation). Areas of abnormal skin pigmentation typically include pale tan or light brown discolorations (cafe-au-lait spots), freckling in atypical locations such as under the arms (axillary region) or in the groin (inguinal region). Such neurofibromin, which is thought to function as a tumor suppressor. In about 50 percent of individuals with NF1, the disorder results from spontaneous (sporadic) mutations of the gene that occur for unknown reasons. Such individuals do not inherit NF1 from their parents, but rather they are the first in their family with the disorder. In others, NF1 is inherited as an autosomal dominant trait. Causes In about 50% of individuals with NF1, the disorder

Organizer

Kristy Brown
Organizer
Yandaran QLD

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