Tad's medical fund
Donation protected
Tad is my friends son, only an infant and has already experienced a journey in health most don't their whole life. Even with a lot of complications, half his heart, and a list of prior/upcoming surgery's he's growing and happy, what a trooper! They had a Youcaring account that was deleted with it's Gofundme Acquisition. They didn't even know! They're so busy traveling right now and caring for Tad, taking time off work to be with him at Nicklaus Childrens Hospital in Miami or watching him 24/7 while home has taken it's toll on their finances. Hopefully we can help them! Here's Tad's father, Tyler giving the whole story I just asked him to write -
"Basically, we found out early on around 19 weeks something was up with the heart back in fort Walton. The OB could only see half of it so he referred us to a high risk fetal maternal cardiologist who gave us the main diagnosis of HLHS but wanted to check with fetal cardiologist. We had over all 4 different diagnoses throughout that period. Thankfully his moms aunt is a Nurse practitioner down in Miami and basically told us this is where the best care in the state is to come down here. After a lot of research we went and interviewed with Dr. Burke of Nicklaus Children’s Hospital in Miami and he shared his philosophy of never saying no and giving every child a chance as well as sharing his statistics that blew every single hospital out of the water as far as survival rate and quality of life. Not to mention his background was incredible and he was the most humble person dedicating all the time we wanted to speaking with him. A week later his moms (Micheleen) water broke and we were on the way to the hospital to deliver a month early. Since he was a very high risk baby considered to be in the first percentile she had to get an emergency c section which I have to admit was very interesting to watch. After delivery we rushed off to the Nicu while mom got all fixed back up, met with our now cardiologist and did everything we had to do in there which was hectic. We came back to see mom again then myself and him got life flight transferred to Nicklaus Children’s since they do not have a delivery unit there. We’ve figured out he’s got hypoplastic left heart syndrome which is essentially half his heart is missing as well as having a severely interrupted aortic arch(ascending and descending do not connect), bi lateral superior vena cava’s (most people only have one, he has two), double right outlet transposition of greater arteries( both greater arteries come out of the right side only and do not twist around each other) atrial blockage via septum (the septum didn’t allow blood flow to the atrium) and was diagnosed with charge syndrome which can cause a lot of different issues. He only has the heart issues and also was born with cleft lip and cleft palate and tracheal issues. He’s now had 3 open heart surgeries and will have his 4th in September as well as 3 catheterization of the heart, has had a tracheotomy which after the next surgery should be able to be weaned off due to his hearts ability to saturate the body, a gtube to feed right in his belly and will have cleft repair and other surgeries after this next heart surgery as well as another heart surgery when he’s 3 and maybe more. He’s gone into cardiac arrest twice and come back with no issues and has also come out on life support and overcame that in 6 days. Little dude is tough as it gets and after all that’s happened which this doesn’t even cover all of it he’s happy every single day and almost never upset."
"Basically, we found out early on around 19 weeks something was up with the heart back in fort Walton. The OB could only see half of it so he referred us to a high risk fetal maternal cardiologist who gave us the main diagnosis of HLHS but wanted to check with fetal cardiologist. We had over all 4 different diagnoses throughout that period. Thankfully his moms aunt is a Nurse practitioner down in Miami and basically told us this is where the best care in the state is to come down here. After a lot of research we went and interviewed with Dr. Burke of Nicklaus Children’s Hospital in Miami and he shared his philosophy of never saying no and giving every child a chance as well as sharing his statistics that blew every single hospital out of the water as far as survival rate and quality of life. Not to mention his background was incredible and he was the most humble person dedicating all the time we wanted to speaking with him. A week later his moms (Micheleen) water broke and we were on the way to the hospital to deliver a month early. Since he was a very high risk baby considered to be in the first percentile she had to get an emergency c section which I have to admit was very interesting to watch. After delivery we rushed off to the Nicu while mom got all fixed back up, met with our now cardiologist and did everything we had to do in there which was hectic. We came back to see mom again then myself and him got life flight transferred to Nicklaus Children’s since they do not have a delivery unit there. We’ve figured out he’s got hypoplastic left heart syndrome which is essentially half his heart is missing as well as having a severely interrupted aortic arch(ascending and descending do not connect), bi lateral superior vena cava’s (most people only have one, he has two), double right outlet transposition of greater arteries( both greater arteries come out of the right side only and do not twist around each other) atrial blockage via septum (the septum didn’t allow blood flow to the atrium) and was diagnosed with charge syndrome which can cause a lot of different issues. He only has the heart issues and also was born with cleft lip and cleft palate and tracheal issues. He’s now had 3 open heart surgeries and will have his 4th in September as well as 3 catheterization of the heart, has had a tracheotomy which after the next surgery should be able to be weaned off due to his hearts ability to saturate the body, a gtube to feed right in his belly and will have cleft repair and other surgeries after this next heart surgery as well as another heart surgery when he’s 3 and maybe more. He’s gone into cardiac arrest twice and come back with no issues and has also come out on life support and overcame that in 6 days. Little dude is tough as it gets and after all that’s happened which this doesn’t even cover all of it he’s happy every single day and almost never upset."
Organizer and beneficiary
Austin Jones
Organizer
Niceville, FL
Tyler Hartrick
Beneficiary
