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Beckham's Beautiful Mind

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WE NEED YOUR HELP! One of our own has recently received a tough blow. Our temp hygienist Kaitlyn Hawk, just got heartbreaking life-changing news regarding her nine month old son, Beckham. (Please read her story in the following paragraph) This news is financially overwhelming for this family.  We want to help and support her and her family in this journey! We are asking that our extended family, ie Facebook family and friends read and share about Baby Beckham and find a way to donate. Our goal is to generate enough funds to help this family replace their loss of wages (due to time spent at the hospital), travel expenses (to and from Seattle) and child care for the 2 older children. Baby Beckham is currently receiving treatment and care at Children's Hospital in Seattle. This will likely continue indefinitely, with ever changing needs of extensive therapies as he gets older. Any donation helps. Please think of this family and find it in your hearts to help in some way. Anything is appreciated!

                                                    Beckham’s Beautiful Mind

Minutes after the birth of our son, we received some very unexpected news: He carried an extra copy of the 21st chromosome. We were told there was no genetic reason for this, we were just a part of the completely random 1% who give birth to a child with Trisomy 21 (Down Syndrome). Although scared at first, it took no time at all for us to realize this: We had hit the jackpot. This sweet boy has filled my heart and soul with an indescribable joy, and I am honored that God has allowed me the privilege of being his mother.           

Just as soon as we had adjusted to this new and wonderful journey of being parents to our sweet baby Beckham, it took another unexpected, yet this time, terrifying turn. At about nine months old we noticed Beckham’s development come to an abrupt halt, and his smile became more and more scarce. He barely looked our way, and would no longer interact with us at all. Soon after this, we also began to notice some subtle seizure-like episodes. We went with our gut feeling that something wasn’t right, and took him to the ER.

 After spending nine days admitted to the hospital, we were given a devastating diagnosis: “Infantile Spasms.” Infantile Spasms are described as “an extremely rare and catastrophic seizure disorder found in infants that is associated with severe intellectual and cognitive disabilities, and most often a poor prognosis.” This disorder occurs in 1 to 5% of Down Syndrome babies for unknown reasons. Beckham has now been in the hospital for two weeks and has begun receiving treatment for this condition.  The treatment includes daily intramuscular injections of ACTH (adrenocorticotropic hormone), which in itself poses some life-threatening risks. Through all of this, we have learned to accept that we do not know what Beckham’s future is going to look like. I will never stop working to push Beckham to his absolute full potential, and I am both hopeful and prayerful that he develops into an active, mischievous, and independent little boy. But the reality is, I do not know if he will ever talk, walk, run, or play sports. I do not know if he will ever hold a career or be independent. I DO know Beckham was blessed with a most beautiful mind that was carefully and artistically created, and I DO know his purpose in life is much, much greater than what I ever could have imagined. I look forward to every minute of watching him touch the lives of those around him, and watching him overcome and conquer every battle and obstacle that comes his way.


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Donations 

  • Lesley Tannenbaum
    • $50 
    • 6 yrs
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Organizer and beneficiary

Powell Family Dentistry
Organizer
Richland, WA
Kaitlyn Hawk
Beneficiary

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