Nicholas Raymond Orsi was born on July 28, 2017, 15 weeks premature. He weighed only 18 ounces (1 lb 2 oz) and was 10 ¼ “ long. His mother Mary had multiple seizures from Eclampsia. This caused Mary and Nicholas to be rushed to UCONN hospital where he was delivered by emergency Cesarean section. He was immediately transferred to the NICU in very fragile condition.
Nicholas was born with a badly underdeveloped respiratory system and Bronchopulmonary Dysplasia (BPD), a serious lung disease. His first two weeks were critical and his medical care by the UCONN’s NICU staff was intense but fortunately he was stabilized enough for them to facilitate continuing medical care. In the following two months the staff attempted to remove his breathing tube multiple time to no avail.
At this point Nicholas hit his first setback, Pneumonia and he contracted MRSA. He was moved into isolation for 3-4 weeks where he struggled to breath on his own and gain weight. Once cleared of Pneumonia and MRSA the decision was made to transport him to Connecticut Children’s Medical Center to further his care. It was here that family and his medical team decided a Tracheotomy and a feeding tube in his stomach would be best for Nicholas.
Nicholas is a very strong-willed baby who endured a five-hour long procedure including a Tracheotomy, a central line, a Gastrostomy tube, and repair of two very large hernias. Since these procedures he has become more stable and is gaining weight regularly. He still has a long way to go needing to meet physical and medical requirements before the process of going home can begin.
Due to the unfortunate and unforeseen circumstances the financial burden has become overwhelming, affecting his entire family. Travel expenses, continuous missed days at work, and escalating medical expenses have put an enormous financial burden on his family. As we look forward to finally bringing Nicholas home we are seeking help in any way you can assist this special little boy and his family.
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