Hi, I'd like to introduce myself: I'm Madeleine, I have the priveledge of being a Mother to one of the most adorable, determined, sweetest little girls on the planet. She's an absolute gift. Chloe also has hypotonic cerebal palsy. She has low muscle tone which makes moving anything in her body really difficult, a cortical vision impairment and she is what we consider 'dyspraxic' which means Chloe knows what she wants to do, but she can't make her body do it. People with dyspraxia need to repeat things hundreds, if not thousands of times to be able to achieve what they're trying to do with relative ease. For Chloe what we've found is doing very intensive therapy helps her overcome this. For example, she has achieved walking in the past six months due to intensive, treadmil type training......she was able to practice stepping thousands and thousands of times before she was able to take her first steps 'for real' in every day life. The NAPA centre in Sydney (originally in Los Angeles) specialise in this type of therapy, and we'd love to be able to take her there. We are hoping to prepare a program for Chloe to spend 4 hours a day with therapists with the goals of: walking independently in unfamiliar environments, limiting her falls, being able to use her hands appropriately for play, eating independently (she would dearly love to feed herself), eating a wider variety of textures, and most of all this would all help her engage and play with children of a similar age: something she's desperate to do. Most children that attend the NAPA centre achieve 6-12 months of development per intensive 'session'.
Unfortunately these programs are really expensive. We are hoping to raise $15 000 to send us to Sydney for a three week intensive program sometime this year. We would be so very thankful for your support to help us help Chloe, and get her walking steadily and hopefully be able to communicate with us. I honestly believe her life will be set on a different path if we can help her achieve those goals.
**update: we are so very grateful to have reached our initial goal, and through further various fundraising opportunities we have now changed the goal with the hope of raising enough money for therapy for Chloe for a year at the NAPA centre. Thank you for your support, liking and sharing our page. M