<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/105378083_1782399873544922_r.png" width="100%" />
<div>Here is Carson’s story:
</div>
<div><br />
</div>
<div>Our son Carson was born in April 2024. During his newborn check, a defect was noticed in his left foot. We were initially told it was positional and muscular and would improve with time and physiotherapy. However, by 11 months old there had been no change, so we sought further investigations.
</div>
<div><br />
</div>
<div>After X-rays and ultrasounds, doctors discovered that part of Carson’s fibula was missing and his tibia was bowed. He was referred to orthopaedic specialists, who initially believed he had Fibular Hemimelia, although there was uncertainty as it could also be Congenital Pseudoarthrosis (CPT). His case was reviewed by specialists around the world, but no definitive diagnosis could be made.
</div>
<div>On 18th June 2025, Carson woke up screaming in pain. We rushed him to A&amp;E where we received the devastating news that his original diagnosis was incorrect and that he had CPT. His leg had suffered an impending fracture, a common complication of this rare condition. Carson was transferred to Sheffield Children’s Hospital, where we were told his leg would not heal without complex surgery and that he would likely require multiple operations throughout his life.
</div>
<div><br />
</div>
<div>For the next 11 months, Carson lived with a broken leg, wearing an AFO splint 24 hours a day and unable to walk. Despite this, he adapted remarkably, finding his own ways to move around by crawling, shuffling and knee-walking. Throughout countless appointments, scans, blood tests an MRI and now being registered disabled and currently needing a wheelchair, his bravery never failed to amaze us.
</div>
<div><br />
</div>
<div>Alongside CPT, Carson has also been undergoing testing for Neurofibromatosis Type 1 (NF1), a condition that can affect bone healing, the brain, eyes and skin. We are currently awaiting further genetic testing results.
</div>
<div><br />
</div>
<div>On 18th June 2026, exactly one year after his fracture, Carson underwent major limb reconstruction surgery at Sheffield Children’s Hospital. The operation lasted over five hours and included removal of diseased bone and a bone graft. He is now recovering at home.
</div>
<div>CPT affects an estimated 0.0004–0.0007% of the world's population, making it an incredibly rare condition. 
</div>
<div><br />
</div>
<div>The past year has been one of the hardest our family has ever faced, but Carson has shown extraordinary courage, resilience and determination throughout. We are incredibly grateful to the team at Sheffield Children’s Hospital and to all our family and friends for their support.
</div>
<div><br />
</div>
<div>To honour Carson’s journey, we will be taking part in several fundraising events over the coming months, including The Otley Run and Tough Mudder. We are raising money for two charities that have supported Carson’s journey:
</div>
<div><br />
</div>
<div>• Sheffield Children’s Hospital • British Limb Reconstruction Society
</div>
<div><br />
</div>
<div>Any donation, no matter how big or small, would mean the world to us. All donations will be split 50/50 between each charity. Thank you for taking the time to read Carson’s story.
</div>
<div><br />
</div>
<div>Love, The Lees Family x
</div>

Courtney Eddison

Raluca Dobrin

Ana Puica

Thomas David Cornwell

Kimberley Heslop

Trevor Hancock

Robert Eddison

Colleen Wilson

Partho Barua

Dawn Cornwell

Matthew Gray

Treana McCunnell

Lauren Walsh

Fred Wood

Ellie Wilson

Supporting Carson’s Congenital Pseudoarthrosis Journey

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Just £197£ to go! Make an impact.

Supporting Carson’s Congenital Pseudoarthrosis Journey

Just £197 to go!
Make an impact.