<div>English below
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<div>Bonjour à tous,
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<div>À la fin du mois de mai un diagnostic est venu bouleverser ma vie : un neurinome de l’acoustique, une tumeur cérébrale très imposante et de dernier stade avant la paralysie. Ce moment a marqué le début d’une épreuve difficile, faite d’opérations, d’attente et de crainte mais aussi d’une immense gratitude d’être encore là pour en témoigner.
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<div>En y repensant, les signes étaient là depuis presque un an. À la même période l’année dernière, j’ai commencé à ressentir une fatigue intense et des douleurs à la tête et aux yeux qui s’intensifiaient avec le temps. En avril, la douleur est devenue telle que j’ai carrément commencé à vomir régulièrement. Pourtant, malgré ces signes d’alerte, la cause réelle est restée inconnue jusqu’à ce diagnostic bouleversant.
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<div>Dans cette traversée, j’ai rencontré des soignants dont la compétence et la bienveillance m’ont guidée. Les neurochirurgiens qui m’ont prise en charge ont sauvé ce qui pouvait l’être, et je sais que sans eux je ne serais probablement plus ici aujourd’hui. Je porte cette vérité avec humilité : ce n’était pas mon heure.
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<div>Cependant, la maladie laisse des traces. Je vis désormais avec la surdité définitive d’une oreille, un équilibre fragile et une main qui peine encore à retrouver sa justesse. Je réapprends chaque jour les gestes simples, avec patience et persévérance.
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<div>Et ce n’est pas encore terminé. Dans les mois à venir, je dois également suivre une radiothérapie afin de stabiliser ce qui reste de la tumeur et éviter qu’elle ne repousse. Ce traitement, essentiel pour la suite, s’ajoute à un parcours médical déjà lourd.
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<div>Après l’épreuve vient une autre réalité : celle des soins à poursuivre et des frais qui s’accumulent.
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<div>Pour retrouver un peu d’autonomie et de sécurité, j’ai besoin d’un appareil auditif spécifique, capable de transmettre à mon oreille valide ce que l’autre ne peut plus entendre. S’y ajoutent les séances de rééducation indispensables, ainsi que les dépenses médicales pour certaines non remboursées.
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<div>Je dois consulter régulièrement :
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<div>un kinésithérapeute pour l’équilibre, une orthophoniste pour la rééducation neurosensorielle, une ergothérapeute pour retrouver les gestes du quotidien, un psychologue, un audioprothésiste pour l’appareillage et le suivi.
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<div>C’est donc avec simplicité et avec cœur que je fais appel à votre soutien.
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<div>Votre aide permettra de financer :
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<div>• L’appareil auditif essentiel à mon autonomie
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<div>• La rééducation nécessaire pour retrouver stabilité et confiance
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<div>• Les frais médicaux non pris en charge
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<div>Chaque geste compte, qu’il s’agisse d’un don ou d’un partage.
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<div>Merci sincèrement à ceux qui m’aideront à poursuivre ma reconstruction.
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<div>——————————————-
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<div>Hello everyone,
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<div><br />
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<div>At the end of May, my life was turned upside down by a diagnosis: an acoustic neuroma, a large brain tumor, already at the final stage before paralysis. That moment marked the beginning of a difficult journey filled with surgeries, fear, waiting… but also with a profound sense of gratitude to still be here to tell the story.
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<div>Looking back the signs had been there for almost a year. Around the same time last year, I began experiencing intense fatigue and growing pain in my head and eyes. By April, the pain had become so severe that I started vomiting regularly. And yet despite all these warning signs, the real cause remained unknown until this life-changing diagnosis.
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<div>Throughout this ordeal, I met caregivers whose skill and kindness guided me. The neurosurgeons who took charge of my case saved what could be saved, and I know that without them, I might not be here today. I carry that truth with humility: it simply wasn’t my time.
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<div>Yet the illness left its marks. I now live with permanent deafness in one ear, fragile balance, and a hand that is still struggling to regain precision. Every day, I am relearning simple movements with patience and perseverance.
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<div>The journey isn’t over. In the coming months, I will also need to undergo radiotherapy to stabilize what remains of the tumor and prevent it from growing back. This treatment, essential for the future, adds to an already heavy medical path.
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<div>After the shock of the diagnosis comes another reality: the ongoing care and the costs that continue to accumulate.
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<div>To regain some autonomy and safety, I need a specialized hearing device capable of transmitting sound to my healthy ear — something the other can no longer do. On top of that come essential rehabilitation sessions and several medical expenses that are not covered.
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<div>I must regularly consult:
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<div>a physiotherapist for balance, a speech therapist for neurosensory rehabilitation, an occupational therapist to relearn daily tasks, a psychologist, and an audiologist for the hearing device and follow-ups
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<div>It is with simplicity and sincerity that I’m asking for your support.
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<div>Your help will contribute to:
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<div>• The hearing device essential for my autonomy
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<div>• The rehabilitation needed to recover stability and confidence
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<div>• Medical expenses that are not reimbursed
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<div><br />
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<div>Every gesture matters, whether it’s a donation or simply sharing my story.
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<div>Thank you truly to everyone who helps me move forward in this recovery.
</div>

Anonymous

Daniel Migliosi

Sylvaine Helary

Emile Rameau

Guy Adam

Cécile Morilla

Bernard et Marie-Laure Thomas

Support Ysaura’s recovery from a brain tumor

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