<div>On April 17, 2026, after months of genetic testing, we learned that our son Shep tested positive for a rare genetic disorder called Sanfilippo Syndrome (MPS-IIIA). My giggly, affectionate, wild, 2-year-old baby boy that I felt like I knew everything about had suddenly been living with a terminal syndrome. More simply put, Shep lacks an enzyme that breaks down cellular waste. This waste is building up in his brain cells and will eventually reach toxic levels, destroying his brain over time. We are told this will result in major regression throughout his life and reduce his life expectancy to his teens. I have never been so devastated in my life, but all of a sudden, every single thing about Shep that I questioned made complete sense. His thick hair and eyebrows no one could place, his speech delays, his disregard for physical pain, his general clumsiness, impulsivity and fearlessness, his frequent behavior reports from school, the way his sweet belly pokes out, his month-long NICU stay—all now sadly made complete sense. 
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<div> The road ahead of us will not be an easy one. There is complete uncertainty right now in regard to potential treatment for Shep, between clinical trials or a pending FDA-approved gene therapy. For now we wait but unfortunately Sanfilippo doesn’t. We are committed to traveling far and wide to access any opportunity we can provide for Shep. We are prepared for Shep's care to evolve and change over the years. We want to provide the absolute best opportunities possible for him. Funds raised will help cover medical care, treatment, travel for treatment, and support for sitters and aides at school as Shep's needs change. We are so grateful for any support, whether through donations or sharing our story. Thank you for standing with our family during this uncertain and devastating time.
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Lisa Mouton

Kayla ONeal

Nicole Domingue

Elizabeth Whitehurst

Carol Whitehurst

Anonymous

Alena Broussard

Laura Tuma

Louise Sargent

Erin Saltzman

Morgan Sellers

Claire Morgan

Emily Broussard

Ellen Ishee

Emily LaPlaca

Gregory Melancon

Wendy Bourque

Victoria Jones

Support Shep’s Fight Against Sanfilippo

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

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Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

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GoFundMe Employees

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desktop

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Platform is Android

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Payment method type group to be vaulted on success

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EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

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International Only

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Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

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AUD Donation Upsell audience

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Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

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Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

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Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

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UC Tipping v20250115 International

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Profile photo entry point audience

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AI Chatbot Audience

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UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

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Custom users

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Android v11.0.0 and above

Users Receiving Payments Paused Notifications

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Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

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GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

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Logged In Users

CH Donation Upsell audience

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Localized Currency

v11.5.0 and above

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Survicate

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NPO Profile Opted-Out

iOS App Version

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PYMK has donors

iOS v12.3.0 and above

Support Shep’s Fight Against Sanfilippo

Still $10,095 to go. Help us build momentum.