<div>•To anyone who has been asking or willing to help our new little family: 
</div>
<div><br />
</div>
<div>Remi Rae Rogers was born 07/10/24 at Woman’s Hospital and has been in the NICU ever since. As of now the doctors are estimating she will be here for a few months based on her conditions. 
</div>
<div><br />
</div>
<div>On the day Remi was born the doctors noticed they were completely unable to get her jaw open and her right nostril was closed off. Immediately she was brought to surgery to get a tracheostomy. (A tube in the neck to secure an open airway) Remi is currently relying on a vent to get oxygen to her lungs and keep her stable. 
</div>
<div><br />
</div>
<div>A few days after Remi was born she had to have a feeding tube put in through her left nostril because of her jaw issues not allowing her to get feedings through the mouth. Before coming home she will be undergoing a surgery to have a gastrostomy tube put in. (A small tube on her belly going directly to the stomach)
</div>
<div><br />
</div>
<div>After further examination the doctors have noticed a few other issues she is having as well. Such as a cleft palate in the roof of her mouth, club foot, and possibly some neurological issues.
</div>
<div><br />
</div>
<div>So far genetic testing has been done and came back normal. She is scheduled to have a number of other test done such as, a MRI and visits from multiple different specialist to try to determine exactly what is going on.
</div>
<div><br />
</div>
<div>Remi’s medical team has been closely monitoring her conditions and although progress is being made, the road ahead remains uncertain.
</div>
<div><br />
</div>
<div><strong><em>•Updated Story:</em></strong> As of 8/23/24
</div>
<div>So far all test have come back normal but the doctors have clinically diagnosed Remi with Moebius Syndrome. Moebius syndrome is a rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Moebius syndrome are born with complete facial paralysis and cannot close their eyes or form facial expressions. As far as the trach goes she is still on the vent with low settings but she still needs the extra support to help her breathe due to her jaw being locked. Over the past week Remi has been super sick and we couldn’t figure out why. That was until a rash showed up on the side of her face and the doctor took a culture of it. When the culture came back she tested positive for MRSA Staph on her face and inside of her trach. The doctors are currently giving her an antibiotic to help fight it off but we are waiting on the blood culture to come back to see if it’s in her blood stream. 
</div>
<div><br />
</div>
<div><strong><em>Updated Story:</em></strong> As of 10/19/24
</div>
<div>At this moment Remi has been doing great overall with the trach, vent, and g-tube. She just made it to 11 pounds and the doctors have ordered her home vent. With that being said we are getting into the talks of discharge very soon here. After 3 long months of uncertainty, excessive training, and sleepless nights we never thought this conversation would come about. There is still no set date yet but we are so excited to know it’s coming in the near future. The doctors are waiting for the vent to come in and make sure Remi will tolerate it well. Most importantly they want to make sure we are comfortable taking care of her and fully prepared. We will continue to give updates as we get them!
</div>
<div><br />
</div>
<div><strong><em>Updated Story: </em></strong>As of 11/26/24
</div>
<div>Since our last update Remi has reached 14 pounds. She was put on the home vent, 10/31/24, for about 3 weeks weeks before she developed hypertension. Hypertension is essentially high blood pressure, it’s continued to get worse so the doctors decided to put her back on the hospital vent. They said she might not have been ready for the big change just yet. Remi has been doing a lot better since being transferred back to the hospital vent. The nurses noticed she was starting to get sick again, with test results coming back for staph in her trach. Plans of coming home have since been delayed with an unexpected discharge date. Other then all the changes Remi has been developing very well becoming much more active and alert. We love watching her grow everyday and pray she can come home by Christmas! Thank you to everyone who has followed along the way. (Updated pictures below)
</div>
<div><br />
</div>
<div>•We are reaching out to anyone who is willing to help out with funds throughout these tough times. With us being a single income family anything helps. The donations will go towards time missed at work due to learning how to care for Remi, as well as additional expenses traveling to and from the hospital and daily needs.
</div>
<div><br />
</div>
<div>Your donation and prayers will be greatly appreciated. Thank you and God bless.
</div>
<div><br />
</div>
<div>For Direct Donations:
</div>
<div>Cashapp- $PresidentialLyfe
</div>
<div>Venmo- @WrldFamousLucas
</div>
<div><br />
</div>
<div><strong>#TeamRemi</strong>
</div>
<div><br />
</div><img alt="Image" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1722216385752949_r.jpg" width="100%" />
<div><br />
</div>
<div><br />
</div><img alt="Image" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1722216385398519_r.jpg" width="100%" />
<div><br />
</div>
<div><strong><em>Updated Picutes: </em></strong>As of 8/23/24
</div>
<div><br />
</div><img alt="81734919_1724453845889207_r.jpg" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1724453845889207_r.jpg" width="100%" />
<div><br />
</div><img alt="81734919_1724453884209257_r.jpg" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1724453884209257_r.jpg" width="100%" /><img alt="81734919_1724453928252407_r.jpg" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1724453928252407_r.jpg" width="100%" />
<div><br />
</div>
<div><strong><em>Updated Pictures:</em></strong> As of 10/19/24
</div>
<div><br />
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1729399749568307_r.png" width="100%" />
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1729399704351092_r.jpeg" width="100%" />
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1729399653452452_r.jpeg" width="100%" />
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1729399621575360_r.jpeg" width="100%" />
<div><br />
</div>
<div><strong><em>Updated Pictures: </em></strong>As of 11/26/24
</div>
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1732652942175579_r.jpeg" width="100%" />
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_1732652848779097_r.jpeg" width="100%" />
<div><br />
</div><img alt="" media_type="3" src="https://d2g8igdw686xgo.cloudfront.net/81734919_173265270299186_r.jpeg" width="100%" />
<div><br />
</div>

Frank Holley

Farnoush Ronaghi khamene

Anonymous

Janet Tilaar

Anna Storey

Deborah Gardner

Shani Mack

noelle roy

zeeshan razzaq

Danielle Scott

Robin Griffin

Tracey Tesauro

Roxann Brown

Support Remi Rae Through Her NICU Journey!

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

be_supporter_comments_enabled_supported_funds

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Support Remi Rae Through Her NICU Journey!

Todavía faltan $1,908. Ayúdanos a generar impulso.