<div>Mavryck is 6 years old.
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<div>Six months ago, he was a healthy, active little boy — running, playing, laughing, going to school, and doing everything a typical 6-year-old does.
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<div>Mavryck has been diagnosed with Cerebral Adrenoleukodystrophy (ALD) and Addison’s disease — two devastating and life-altering conditions.
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<div>Cerebral ALD is a rare, genetic, terminal brain disease. It is caused by a mutation that prevents the body from properly breaking down very long chain fatty acids. These fatty acids build up in the brain and destroy myelin — the protective covering around nerve cells. It is the most severe form of ALD, marked by a rapid and relentless inflammatory process that destroys the brain’s myelin. Once the damage begins, it spreads quickly. Children who were once thriving can become completely dependent in a matter of months.
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<div>In just six months, Mavryck has lost everything he once knew.
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<div>Addison’s disease (adrenal insufficiency) means his body cannot produce the critical hormones needed to respond to stress or illness. Without constant medication and careful monitoring, it can become life-threatening very quickly.
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<div>Mavryck now requires 24/7 care from his parents.
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<div>He is fully dependent on them for every need. Their lives have become a nonstop cycle of medications, monitoring, appointments, labs, travel, and round-the-clock vigilance. The emotional weight of watching your child lose abilities is unimaginable. The financial burden that comes with full-time caregiving and ongoing medical needs is overwhelming.
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<div>Every dollar helps ease the burden so his parents can focus on what matters most — caring for their son and spending every moment they can with him. 
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<div>This family is living through the unthinkable — facing the reality of what this disease can do, while still choosing to fight for him every single day.
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<div>Please continue to lift Mavryck and his family up in prayer. Share his story. Support them in any way you feel led. Awareness matters. Research matters.
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Anonymous

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NICOLE MEYERSICK

Mavryck's Fight with Cerebral Adrenoleukodystrophy

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Mavryck's Fight with Cerebral Adrenoleukodystrophy

Still $42,281 to go. Help us build momentum.