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Support Leah's Battle with Rare Lung Disease

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Hi, my name is Leah, I have a genetic disorder called TSC and have been diagnosed with a rare progressive lung disease called LAM( lymphangioleiomyomatosis) i underwent recent surgery on a tumor in my kidney around 6 cm to have the blood supply to that tumor cut off and instead of one vessel it was two that supplied the tumor! It was a embolization of the kidney! After my surgery my lungs started getting more dependent on oxygen and my o2 stats were lower than normal! I am currently waiting to get into a LAM clinic in NC, and will be going to the mayo clinic in
rochester MN in sept to see if I also have MS! I have had to stop working due to my decline in my health so as you know it’s been financially hard! My husband and I are trying to get help for our trip in sept. And to help towards anything else like medical bills. I’m also experiencing seizures as well! If you can help anyway we really appreciate it very much !!! God Bless !

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    Leah Madden
    Organizer
    Aiken, SC

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