My name is Tristany and I am the mother to three of the most amazing children.

Last Thursday 1/16 my eldest son Hudson was hospitalized for the second time in a few years with Thrombotic Microangiopathy due to a viral infection, this time Flu A.

Because this was the second occurrence, the Nephrology (Kidney) doctors wanted to investigate further. This led to a diagnosis of aHUS (Atypical Hemolytic Uremic Syndrome). Now if you are like, what even is that, you are not alone. We were shocked to find out that not only does our son have something serious going on, but also that it is such a rare gentic disorder that only around 5,000 people have worldwide.

We got discharged and are home to heal from the viral infection as a family.

This hospital stay and diagnosis have put an emotional, physical and financial strain on our family.

This diagnosis requires lifelong treatment with immosuppressant drugs and there is currently no cure. We can only wait as genetic testing will tell us more about the prognosis and treatment options, however that will be roughly 6 weeks.

Currently my family has lost wages for 2 weeks and incurred many bills traveling to and from the hospital to care for all of our children and we will continue to need support as we navigate this very new diagnosis with all of the unknowns.

Any money will go to helping keep our family afloat while we focus on Hudson's health and recovery and anything not needed for that will be saved to cover future hospital visits and treatments.

If you wish to read more about this syndrome or if you have any questions please reach out. You can also learn more about this disease from https://ahus.org/

You can donate directly here, via venmo or zelle or simply share our story with others to help us.