SUPPORT FOR LOLA MAY

This is the adorable and Beautiful Lola May. Lola is Three years old, from Skelmersdale and has a very rare genetic disorder known as Mowat Wilson  Syndrome.  Mowat-Wilson syndrome is a genetic condition that affects many parts of the body. Major signs of this disorder frequently include distinctive facial features, intellectual disability, delayed development, an intestinal disorder called Hirschsprung disease, and other birth defects.
Children with Mowat-Wilson syndrome have a square-shaped face with deep-set, widely spaced eyes. They also have a broad nasal bridge with a rounded nasal tip; a prominent and pointed chin; large, flaring eyebrows; and uplifted earlobes with a dimple in the middle. These facial features become more distinctive with age, and adults with Mowat-Wilson syndrome have an elongated face with heavy eyebrows and a pronounced chin and jaw. Affected people tend to have a smiling, open-mouthed expression, and they typically have friendly and happy personalities.
Lola was born without any Spleen, she has holes in her heart and in the valves around her heart. She also has cysts on her Kidneys, small head stature, uplifted ear lobes, Hurshprungs disease which this year will result in her Colon having to be removed. Despite all this Lola is always full of smiles loves the attention and if you get to meet her as I did she will certainly melt your heart. 
We are trying to raise much-needed funds to buy Lola some sensory equipment and in particular an IPad and the likes of. 
If you could donate something no matter how small it will beyond doubt make a huge difference to this little girls life. 
I thank you all in advance cheers Carl