Support for Jude
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October is dwarfism awareness month and I’d like tell you about a special, beautiful, little warrior named Jude Sullivan Peters. As you will see, I’m pretty obsessed with this remarkable little guy! Not only is he amazing, he is also my precious grandson! I’ve had a front row seat to his life and I’ve watched Jude fight some very tough battles. We have been amazed watching this fearless, resilient little warrior wage the war for survival from the womb. When the odds are stacked against him he doesn’t give up but he rises up to fight unlike anyone I’ve ever known. He gives the word BRAVE a new meaning! When we first heard that Jude had dwarfism we didn’t realize that some types of dwarfism are lethal.
Jude resides in Charlotte NC with his parents; Sully and my daughter Hannah Peters. Jude is tiny (weighing in at nearly 12 lbs)
He’s a cheerful, smiling toddler with a strong warrior’s spirit; he has an amazing quality about him that draws people to him. To meet Jude is to love him.
Jude has a very rare and lethal form
of dwarfism called Rhizomelic Chondrodysplasia Punctata (RCDP for short). He is one of less than 100 children in the world with this devastating diagnosis. His chances for survival at birth were slim to none. His parents, Sully & Hannah Peters, have fought so hard for their baby boy, whom we affectionately call the "Brave Little Warrior.” He sees dozens of specialists at Levine children’s Hospital. as well as occupational, physical, and speech therapists and is defying odds every single day. Sully and Hannah travel to Delaware every few months with Jude to be seen by his main medical team at Alfred I. DuPont Children’s Hospital. His story is one of hope and faith in adversity. It has brought light and love to thousands of people all over the world!
You can follow Jude on his facebook page -
www.facebook.com/prayingforjudesullivanpeters
Their blog -
http://theivoryarrowblog.com
Or
Instagram -
https://www.instagram.com/hannahkatelyn/?hl=en
Please join us in our fight to save Jude’s precious life! Our Brave Little Warrior fights valiantly for survival on a daily basis. Jude is four years old and there is potential research that could lead to treatments that may extend or even save his life.
We the friends and family of Jude are hosting this fundraiser along with The Moms We Love Club (themomsweloveclub.com) to help cover the cost of his upcoming medical trips and to cover the cost of some of his medications that aren’t covered by insurance. Flu season is upon us and Jude needs a synagis vaccine that costs about $3,000.00 a month during cold and flu season. A common cold for Jude is life threatening. Every year we apply for a program to approve for this vaccine with high hopes and will continue to prayerfully do so but unfortunately he's been denied. We are so thankful for your help in covering these costs. Jude's followers have faithfully made this possible for us in the past. Jude sleeps in the room with mommy and daddy every night so Sully & Hannah desire to extend Jude's room and turn it into a therapy and sensory room. Jude gets hours of therapy and has a lot of gear. The room will also contain storage for all of Jude's medical supplies. We greatly appreciate everyone who has given to our family and made it possible to provide Jude with the best care possible. Thank you for your help in sharing Jude’s story! Because of the rareness of Jude’s disease RCDP awareness is very important.
For those who have previously asked for an address to see Jude a card -
Jude Peters
PO Box 620084
Charlotte, NC 28262
Sincerely,
Darla Collins (Jude’s Grandmother)
Jude resides in Charlotte NC with his parents; Sully and my daughter Hannah Peters. Jude is tiny (weighing in at nearly 12 lbs)
He’s a cheerful, smiling toddler with a strong warrior’s spirit; he has an amazing quality about him that draws people to him. To meet Jude is to love him.
Jude has a very rare and lethal form
of dwarfism called Rhizomelic Chondrodysplasia Punctata (RCDP for short). He is one of less than 100 children in the world with this devastating diagnosis. His chances for survival at birth were slim to none. His parents, Sully & Hannah Peters, have fought so hard for their baby boy, whom we affectionately call the "Brave Little Warrior.” He sees dozens of specialists at Levine children’s Hospital. as well as occupational, physical, and speech therapists and is defying odds every single day. Sully and Hannah travel to Delaware every few months with Jude to be seen by his main medical team at Alfred I. DuPont Children’s Hospital. His story is one of hope and faith in adversity. It has brought light and love to thousands of people all over the world!
You can follow Jude on his facebook page -
www.facebook.com/prayingforjudesullivanpeters
Their blog -
http://theivoryarrowblog.com
Or
Instagram -
https://www.instagram.com/hannahkatelyn/?hl=en
Please join us in our fight to save Jude’s precious life! Our Brave Little Warrior fights valiantly for survival on a daily basis. Jude is four years old and there is potential research that could lead to treatments that may extend or even save his life.
We the friends and family of Jude are hosting this fundraiser along with The Moms We Love Club (themomsweloveclub.com) to help cover the cost of his upcoming medical trips and to cover the cost of some of his medications that aren’t covered by insurance. Flu season is upon us and Jude needs a synagis vaccine that costs about $3,000.00 a month during cold and flu season. A common cold for Jude is life threatening. Every year we apply for a program to approve for this vaccine with high hopes and will continue to prayerfully do so but unfortunately he's been denied. We are so thankful for your help in covering these costs. Jude's followers have faithfully made this possible for us in the past. Jude sleeps in the room with mommy and daddy every night so Sully & Hannah desire to extend Jude's room and turn it into a therapy and sensory room. Jude gets hours of therapy and has a lot of gear. The room will also contain storage for all of Jude's medical supplies. We greatly appreciate everyone who has given to our family and made it possible to provide Jude with the best care possible. Thank you for your help in sharing Jude’s story! Because of the rareness of Jude’s disease RCDP awareness is very important.
For those who have previously asked for an address to see Jude a card -
Jude Peters
PO Box 620084
Charlotte, NC 28262
Sincerely,
Darla Collins (Jude’s Grandmother)
Organizer and beneficiary
Darla Collins
Organizer
Charlotte, NC
Hannah Katelyn Collins Peters
Beneficiary
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