Help Chell's Heart
Donation protected
I've been in the ER 3 times already this year. Official diagnosis so far:
Heart rhythm abnormalities-PSVT, Orthostatic Hypotension, Dystonia, Myoclonus, Chronic PTSD, Gallbladder polyps & dyskinesia, Psoriasis, Raynaud's disease. I'm waiting on insurance approval to see a specialist at OHSU to be tested for Postural orthostatic tachycardia syndrome and Dysautonomia. I have my first visit with a Neurologist in a week. I'll have gallbladder surgery soon. My heart condition, PSVT, causes a short circuit my heart resulting in tachycardia, arrhythmias, palpitations, ectopic beats, & in my case causing my heart to suddenly beat at up to 275bpm. Which has the potential to cause cardiac arrest, especially with the other issues. I've had 2 surgeries for this in the past, but they weren't a cure. I've been living with PSVT since the first episode came on when I was just 22yrs old. Some of the other symptoms started after contracting COVID in Jan 2021. I also tested positive for Lymes & Epstein-Barr using a Rife machine, I'm fighting with doctors & insurance to be properly tested & get the right treatments.
Disabling symptoms:
Syncope(passing out), heart abnormalities, muscle tremors & spasms, gait abnormalities & progressive foot drop, anemia, chronic fatigue, sensory loss, neck pain, balance problems, numbness in hands & feet, ringing in the ears, migraines, gastrointestinal issues, urinary retention, vision issues, excessive sweat or no sweat, heat & cold intolerance, loss of body temperature regulation, constant burning pain in skin, flushing (dry, hot, red face or upper body), multiple hypersensitivities, hives, severe gallbladder pain, bloating, dry eyes & mouth, difficulty sleeping & unrefreshed sleep, difficulty standing or walking, exercise intolerance, lightheaded & shortness of breath, poor circulation, chest & heart pain, blood pooling, anxiety, depression, etc..
Some days it's impossible to do much except lay down with my feet elevated & rest. It's hard to describe all that I am going through, physically, mentally, emotionally, spiritually, I'm exhausted. I am in the process of getting disability. I have not been able to work for over a year now. The difficulties seem insurmountable at times, especially when I think of all the dreams & plans I had that are no longer possible. But I have faith that everything has a purpose, I can face each day with God holding my heart. When I first posted about my condition & shared the fundraiser, I had no idea the amount of support & love that would come pouring in! Family & friends have been helping a lot & many have generously donated. I now live with my mom & step-dad who are helping to take care of me. I feel blessed & am so very grateful for all the help.
My daily priorities are; Hug more! Laugh everyday! Make the most of every moment & always remember to carry a song in my heart. I am taking life one day at a time & doing my best to reach out to friends & family to let you all know how much I Love You!!
Donations help with: transportation to doctor appointments, herbs & medicine, acupuncture therapy, nutritious food, phone bill, electricity, basic needs, etc..
Other needs: wearable health monitor, compression socks & leggings, adjustable bed, working laptop, polarized sunglasses.
Thank you from the depths of my fireheart for your support, encouragement & for loving me!
May God bless you all - Chell Fireheart
Heart rhythm abnormalities-PSVT, Orthostatic Hypotension, Dystonia, Myoclonus, Chronic PTSD, Gallbladder polyps & dyskinesia, Psoriasis, Raynaud's disease. I'm waiting on insurance approval to see a specialist at OHSU to be tested for Postural orthostatic tachycardia syndrome and Dysautonomia. I have my first visit with a Neurologist in a week. I'll have gallbladder surgery soon. My heart condition, PSVT, causes a short circuit my heart resulting in tachycardia, arrhythmias, palpitations, ectopic beats, & in my case causing my heart to suddenly beat at up to 275bpm. Which has the potential to cause cardiac arrest, especially with the other issues. I've had 2 surgeries for this in the past, but they weren't a cure. I've been living with PSVT since the first episode came on when I was just 22yrs old. Some of the other symptoms started after contracting COVID in Jan 2021. I also tested positive for Lymes & Epstein-Barr using a Rife machine, I'm fighting with doctors & insurance to be properly tested & get the right treatments.
Disabling symptoms:
Syncope(passing out), heart abnormalities, muscle tremors & spasms, gait abnormalities & progressive foot drop, anemia, chronic fatigue, sensory loss, neck pain, balance problems, numbness in hands & feet, ringing in the ears, migraines, gastrointestinal issues, urinary retention, vision issues, excessive sweat or no sweat, heat & cold intolerance, loss of body temperature regulation, constant burning pain in skin, flushing (dry, hot, red face or upper body), multiple hypersensitivities, hives, severe gallbladder pain, bloating, dry eyes & mouth, difficulty sleeping & unrefreshed sleep, difficulty standing or walking, exercise intolerance, lightheaded & shortness of breath, poor circulation, chest & heart pain, blood pooling, anxiety, depression, etc..
Some days it's impossible to do much except lay down with my feet elevated & rest. It's hard to describe all that I am going through, physically, mentally, emotionally, spiritually, I'm exhausted. I am in the process of getting disability. I have not been able to work for over a year now. The difficulties seem insurmountable at times, especially when I think of all the dreams & plans I had that are no longer possible. But I have faith that everything has a purpose, I can face each day with God holding my heart. When I first posted about my condition & shared the fundraiser, I had no idea the amount of support & love that would come pouring in! Family & friends have been helping a lot & many have generously donated. I now live with my mom & step-dad who are helping to take care of me. I feel blessed & am so very grateful for all the help.
My daily priorities are; Hug more! Laugh everyday! Make the most of every moment & always remember to carry a song in my heart. I am taking life one day at a time & doing my best to reach out to friends & family to let you all know how much I Love You!!
Donations help with: transportation to doctor appointments, herbs & medicine, acupuncture therapy, nutritious food, phone bill, electricity, basic needs, etc..
Other needs: wearable health monitor, compression socks & leggings, adjustable bed, working laptop, polarized sunglasses.
Thank you from the depths of my fireheart for your support, encouragement & for loving me!
May God bless you all - Chell Fireheart
Organizer
Chell Fireheart
Organizer
Central Point, OR
