Amelia was born 1st October 2018 and appeared to be a healthy baby who made normal progress and is deeply loved by both of her parents.
During March, Amelia experienced a niggling illness that did not appear to overly concern medical doctors during her mother's repeated visits. On 8 April, Amelia's condition suddenly deteriorated and she was admitted into hospital. She is in the Royal Children's Hospital (RCH).
Her heart is failing and she is extremely ill and in need of a heart transplant. Currently she is waiting to sufficiently strengthen for surgery for a Ventrical Assist Device (VAD) that will take over for her heart until a suitable donor can be found for a heart transplant.
Amelia's father is self-employed and not receiving an income while with Amelia in the RCH. Amelia's mother had recently resumed limited work with Amelia being cared for by her grandmother. Amelia's mother is also self-employed and not receiving an income.
Both parents understandably want to be with Amelia 24/7. If Amelia survives the procedure for the VAD, she will need to live at the RCH in ICU for the months or years that it takes to find a suitable donor to enable a heart transplant to take place. Her mother will be with her full-time and currently her father cannot contemplate living elsewhere during this very traumatic journey including that even if the surgery for the VAD is successful, she will remain at high risk of death. It is likely to be some time before he is able to return to earning an income but their cost of living is now even higher with the additional expenses of being in the hospital.
Although currently Amelia's well-being and treatment is consuming all of their thoughts, the reality is that they have a mortgage and normal living expenses but now without an income.
Any donations to ease their financial stress will be much appreciated. If more money is raised than is needed this will be donated to the Royal Children’s Hospital.