Support Ellie Leykam's Memorial Fund

“If I know what love is, it is because of you”

Jonah and Liz welcomed their daughter, Elliana “Ellie” May Leykam, into the world on September 25th at a petite 2 lbs and 5 oz. Ellie arrived two months earlier than her due date, bringing joy and light into their lives. With her sweetness and big blue eyes, she captivated everyone she met.

Ellie was born with a rare metabolic disorder known as Trifunctional Protein Deficiency (TFP), which prevented her body from using fat for energy. Despite her challenges, Ellie fought valiantly against her diagnosis for as long as she could. With the support, love, and snuggles, from family and her incredible internal strength, she grew to 4 lbs 11 oz and conquered milestone after milestone for a premature baby.

She inspired everyone who met her and fought as hard as her body would allow. She was able to come home after being cared for at Phoenix Children’s Hospital for 6 weeks. At the hospital and home, she loved being sung to, a few of her toys and stuffed animals, and exploring new things with her parents.

She passed away on November 18th, surrounded by her loving parents, Jonah and Liz.

They are asking in lieu of flowers to contribute here. The funds will go towards a private garden, a memorial bench, and an organization dedicated to raising funds for research for genetic metabolic conditions in remembrance of her. If you wish to make a direct donation to the foundation instead, please see the details below.

Thank you for keeping Ellie and her family in your thoughts and prayers. Your support means more than words can express.

For Direct Donations to the Foundation:

ONLINE: Donate Now - UPMC Children's Hospital Foundation. Under the Gift Designation field, please select “Other” and type in Elliana Leykam/Fisch Family Fund. The online form will prompt for the tribute name and info.

CHECK: Please make check payable to “UPMC Children’s Hospital Foundation” and note IMO of Elliana Leykam/Fisch Family Fund in the memo or accompanying correspondence. Mail checks to UPMC Children’s Hospital Foundation, 4401 Penn Ave, Pittsburgh, PA 15224.