<div>Almost every day, a concerned parent notices their child’s eyes moving in an unusual, back and forth motion. They take their child to the doctor, who runs a battery of tests, looking for scary diseases or brain tumors. After finding none, and landing on a diagnosis of infantile nystagmus, the doctor sighs with relief and sends the parents on their way. Possibly with a shrug and “there is nothing we can do”, because there is no cure. The parent is left to fend for themselves, with a child that might have a significant visual impairment, that glasses cannot fix.
</div>
<div><br />
</div>
<div>Nystagmus is an involuntary, repetitive eye movement that usually results in some degree of visual loss and may be associated with other conditions that limit vision. The degree and direction of eye movement, amount of visual loss, and resulting impairment vary greatly from person to person. Nystagmus may be one of several infantile types or may be acquired later in life.
</div>
<div><br />
</div>
<div>Infantile nystagmus is considered a rare disease, although estimates of the prevalence can be as common as 1 in 1000. So, it does not get much attention from the medical research community, even though it actually affects many people. Enter the American Nystagmus Network, a 501(c)3 nonprofit that strives to raise awareness and to advocate for research. Our mission is to improve the quality of life for all persons and families affected by nystagmus, through organized community support, education, public awareness, and research.
</div>
<div><br />
</div>
<div>We are organizing a dedicated nystagmus research workshop that will bring together 15-20 international researchers to share their studies and findings related to nystagmus treatment and interventions. The collaboration among the disparate researchers in a very niche research field is unique, and it will hopefully push research forward and enable breakthroughs in treatments for nystagmus.
</div>
<div><br />
</div>
<div>Please help us make this event happen. It is surprisingly expensive to book event space, hotel rooms, food and supplies for a small group of researchers. That is, all the mundane things that are required to let the researchers do great things. Help us support all those parents who are told, “there is nothing we can do”.
</div>
<div><br />
</div>
<div><strong>Donate today—and be part of a brighter future.</strong>
</div>

Anonymous

Gary Weinstein

Carol Bell

Sandra Rojakovick

Rosalyn Adekunle

Cecilia & Olu Oduwole

Jeanette Dinwiddie-Moore

Tunji and Lara DaSilva

Olutola Akiode

Patricia Jaynes

Stephanie Miller

Anne Horwitz

Jeanette Hicks

Claire Mincemoyer

Evelyn Gonzalez

Support ANNs Nystagmus Research Workshop

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

currencyCode

Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

categoryGroup

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

userCurrencyCode

Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Support ANNs Nystagmus Research Workshop

Still $7,540 to go. Help us build momentum.