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<div>Anderson a 4 year old little boy who has had seizures since he was 2 months old has recently been diagnosed with Labrune syndrome. This has been a long 4 year process to figure out what Anderson has. Multiple hospital stays and tripes to Boston mass general hospital.
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<div>Labrune syndrome, also known as Leukoencephalopathy with Calcifications and Cysts (LCC), is a rare genetic disorder characterized by abnormalities in the brain's white matter, along with the presence of calcifications and cysts. It's a type of leukodystrophy, meaning it affects the white matter, which is crucial for transmitting nerve signals. The condition is caused by mutations in the SNORD118 gene and is inherited in an autosomal recessive manner. 
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<div>Even though Anderson looks like a healthy little 4 year old. There are chances over time Anderson could lose motor skills. Not being able to walk, talk and eat. We are using this gofund me to help Anderson and his family out. At this time there are no treatments for this rare genetic disorder. But there are trials and doctors he can see. Anderson already heads to Boston to see his leukodystrophy doctors but he will also be going to Washington DC to see a Labrune syndrome genetic doctor. There is also a trail medication Anderson can test out. While this is a trial medication the cost will have to come out of the pockets of Anderson parents. This medication will slow down the growth of the cystic in his brain. We hope you can help out this family to make sure Anderson gets to live a normal life.
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Abigail Garrepy

Anonymous

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Smithfield Firefighters

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Support Anderson on his LCC Labrune syndrome journey

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

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English only

Deprecate Stripe Legacy

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Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

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Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

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Posters INTL

NPO Profile Opted-In

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UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

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Activity Tracking v1 Beta Testing

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Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

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UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

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ach frontend audience

Android v11.0.0 and above

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PYMK has donors

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Support Anderson on his LCC Labrune syndrome journey

Still $1,856 to go. Help us build momentum.