603
603
19

Jade's Journey

$87,707 of $100,000 goal

Raised by 630 people in 2 months
Created May 2, 2019
I'm telling this on behalf of my sister in law Maria, her husband Lee and their daughters Ruby & Jade. 

We all have a lot going on in our lives but this family have been hit really hard!

Jade is 5 years old with an amazing character & a crazy zest for life, who is always laughing.  She began suffering from sporadic headaches since starting full time school at the beginning of this year.  After seeking medical advice, Maria took Jade for an MRI on the 12th April 2019.

That day their lives were turned upside down! The MRI detected a brain tumour the size of an apple and Jade was rushed to Perth Children's Hospital to be admitted.

The following Monday, in the hands of some amazing doctors, Jade underwent a marathon operation to remove the whole tumour.  The operation went well & although sore and puffy eyed, Jade surprised everyone by coming out of ICU one day after the operation and was back to her cheeky self chatting to everyone in the following days.  After a week in hospital Jade managed to go home for Easter,  much to the relief of all her family and friends.38930832_1556780791548038_r.jpeg
However, after a week at home getting back to normal, Jade was readmitted to Perth Children's Hospital as the swelling on her head had increased.  To everyone's disappointment, Jade had to undergo another operation as an infection had occurred which was causing the swelling.  Once again this remarkable little girl bounced back to being the 'cheeky monkey' we all know Jade is.

38930832_1557209665317465_r.jpeg
That week whilst Jade was still in hospital Maria & Lee received the heart breaking news that  the tumor they removed was a Atypical teratoid rhabdoid tumor (AT/RT), a very rare tumor, so totally devastating for them.

The journey for Jade is just starting and it's going to be an enormous rollercoaster for the whole family. At this stage the paediatric oncology team have developed a treatment plan including chemotherapy and radiotherapy which will begin as soon as Jade's infection clears. Given the rare nature of the tumor they have been advised that potentially Jade may require further treatment in America.

To add to the difficulty of Jade's diagnosis, her Dad Lee has been living with prostate cancer for 9 years and been unable to work for the last few years due to his ongoing treatment.

So why GoFundMe?

Maria & Lee appreciate all the love and support  that has been offered. At this point we really want to help lift the financial burden for them.

Lee, Maria and their other daughter Ruby are strong and resilient and never ask for help even when it has been really tough.  However the months ahead are going to be really challenging for all of them on their journey with Jade.  Maria is not going to be able to work while Jade has her treatment, so the funds raised will help with the loss of her income and also help with the potential medical expenses if treatment is sought in America. We also hope that some funds will be put to having some fun family times!

38930832_1557466554205020_r.jpeg
I want to thank everyone for taking the time to read this and hopefully with the help of this page and a little help from the amazing people surrounding them we can spread the word & bring a bit of relief for Maria, Lee, Ruby & Jade.  I have set a goal of $100,000, if we reach it, fantastic, but to be honest every little bit will help!!

Thank you to you all for your love & support it means so much to Lee, Maria, Ruby & Jade xxxx

38930832_1557406737865798_r.jpeg

*I will update the page when more is know about the treatment plan.
+ Read More
Again it has been a while since the last update, so apologies as I know everyone wants to know how Jade is.

Firstly, the support, generosity & kindness of friends, family, the Duncraig community and far beyond has been overwhelming. It makes you realise how lucky you are to have so many wonderful people supporting Jade and her ongoing journey! When setting up this page we gave ourselves a goal as wasn't sure, but the amount that has been raised along with the additional donations from various businesses is amazing, this now alleviates the financial pressure for the family and lets them focus on Jade. Thank you to every one of you, words can't express how appreciated this is.

On the 29th June, it marked 61 days that Maria & Jade have been on the oncology ward at Perth Children's Hospital. There have been lots of ups and downs during this time. The chemotherapy treatment to date has been pretty tough, the side effects have taken their toll on Jade. On the upside though, when she has been feeling better, she can be seen racing around the ward on the scooters and cars with Mum and medicines in tow, which amuses the nurses.

Last week Jade was given a leave pass from the hospital, the family were for the first time since the diagnoses able to have nearly a week of being together at home and have some 'family time', this was special for them, it also allowed Maria to recharge her batteries.

Jade is now back in the hospital and onto her third round of Mega chemotherapy, although it's only a few days of chemotherapy, the recovery time for Jade is near to four weeks. The Oncology team has advised Maria that there will be two more cycles of chemotherapy after this one and then the direction from the hospital is that they will be going to America for Proton treatment. Paperwork is still be finalised for this but there hoping in the upcoming weeks they will receive the green light enabling Jade to get this required treatment.

I will update the page once we know more.
+ Read More
The support for Jade's Journey continues to be amazing, thank you to everyone for your generosity, it means so much to Maria, Lee, Ruby and Jade.

It seemed like yesterday when I did the last update, but in the last few weeks, Jade has completed her first lot of Chemotherapy and the oncology team have been successful with the stem cell collection. For Maria and Jade, there have been good days along with a number of bad days where the effects of the chemotherapy treatment have taken there toll on Jade. For the majority of the time, Jade has remained in hospital with a couple of days were they have been given an afternoon leave pass to get home, on Sunday, Jade was given her first night leave, for the first time in about 40 days the family were together at home, which I know was really special.

Jade is now back in hospital & has started her second round of Chemotherapy.

Going forward the Oncologist team at PCH spoke with Maria late last week and have advised they have changed the treatment protocol, Jade will now complete all her chemotherapy treatment here in Perth, then once finished they will hopefully travel to the US to complete the Proton therapy treatment. This is still under review and paperwork is going through the various channels to get signed off, we have everything crossed that this happens & they get the green light to get to the US for the treatment.

I'm sure lots of you read the paper at the weekend, but for others the Sunday times published an article on Page3 of Jade, she loved the camera man and didn't mind posing for the camera, a copy of the gorgeous photo of Jade.

https://thewest.com.au/news/wa/proton-therapy-anxious-wait-to-see-if-jade-can-head-to-the-us-ng-b881221718z

Thank you again to everyone, your support, love and generosity means the world xx
+ Read More
Thank you for the overwhelming support and messages that have come in since the page went live on Friday, the donations have been incredible.

I wanted to let you know that Jade has now moved to the Oncology ward at Perth's Children Hospital to start her chemotherapy treatment, the next part of her journey. Today is day#1 of her treatment of what I believe is going to be a long road ahead with weeks spent in hospital.

Jade has been incredible throughout this and amazed everyone, her smile is infectious and she is leaving her mark throughout the hospital, the nurses at Neurology ward were sad to see Jade leave yesterday.

Please keep sharing & I will update again once Maria and Lee know a bit more on the treatment plan.

Wanted to share a couple of photos from today, Jade had a visit from the Daglish fire crew who presented her with harmony bravery unicorn, very special.
+ Read More
Read a Previous Update

$87,707 of $100,000 goal

Raised by 630 people in 2 months
Created May 2, 2019
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
TL
$50
The Lancaster-Smiths
12 hours ago
$1,000
Anonymous
3 days ago
AN
$20
Amanda Noordzy
3 days ago
$50
Anonymous
5 days ago
RA
$200
Ramzi & Marcia Abboud
5 days ago
$500
Anonymous
6 days ago
PK
$500
Peter Kerr
9 days ago
DT
$320
Deidre Toms
10 days ago
GT
$50
Gladys Tay
10 days ago
SC
$500
Showtastic Community Choir
10 days ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.