Surgery for Ace

Hey everyone! This is something we didn’t want to do although it’s came to this. Some may already know the things we have been dealing with the past 2 months with our beautiful boy but most don’t. Our boy was born with sagital craniosnytosis which is a pretty big word to describe his bone on his skull fused together prior to being born. He will be undergoing a surgery April 16th to open that bone so his brain will be able to grow normally and not add so much pressure and it will be able to grow normally instead of elongated. After the surgery he will need to do helmet therapy for 3 months. He has a few other things that will need to be addressed and taken care of in the near future.  The amount of hospital bills and specialist appointments are gradually adding up and the helmet is not fully covered by insurance and we will have to pay a good portion out of pocket & I have been out of work the past 3 months. Understanding the pandemic we are all  really tight with money but any little bit will truly help us to be able to afford the helmet for our little man!  Thank you all so much in advance and we appreciate anything anyone could do to help us afford this for our son!


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  • Liz Tinari 
    • $50 
    • 4 mos
  • Rodney Fisher  
    • $20 
    • 5 mos
  • Celeste Krause 
    • $100 
    • 5 mos
  • Jenn O'Neill 
    • $40 
    • 5 mos
  • Anonymous 
    • $50 
    • 5 mos
See all


Marrissa Santoleri 
Smyrna, DE
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