￼￼A Day in McKenna’s Life
“Although I may look healthy to just about anyone who sees me, I’m far from it. I live with several debilitating hidden syndromes. Living with these disorders have stripped my life and sanity away from me piece by piece, with what seems to have no end in sight. My health issues have made my body function in ways that many doctors still don’t understand. Always a comforting thing to hear from doctors. :) As my day begins, so does the suffering which continues until the time I’m finally able to go to sleep. However, I do have good days every now and then but my hope is to make that an everyday thing. So far some of my greatest endeavors consist of, losing 40 pounds within just a couple of months due to not being able to eat (giving me the great luxury of a feeding tube). This might include a day of Autonomic Seizures (my record is 30 in one day...I know, it’s pretty impressive..), temporary paralysis (quite refreshing to wake up unable to move my legs or even feel them), pancreatitis (3 times), and the most painful of all, a ruptured kidney. To include not having the strength to walk on my own, feed myself and on some occasions speak, severe migraines that can last up to months, feeling as if my stomach has been carved out with sandpaper then thrown into the pits of hell, which may sound like an exaggeration but I assure you it’s not…black outs (rather inconvenient...), etc. I have reached the last of my options and this is my only chance to live as much of a normal, happy and healthy life possible living with the various syndromes that I struggle with. Thank you SO MUCH for taking your time to read my story. I can’t begin to say how much every dollar, moment and SHARE with your friends and family are appreciated. It gets me one step closer to my goal.....living what I consider as normal as possible.”
Our family is reaching out in desperate need of help to make Stem Cell Treatment a reality for McKenna. Since the age of 7, she’s dealt with major health and stomach issues to include a stomach full of ulcers that stretched into her esophagus, totaling at least 7. She was finally diagnosed with a syndrome that affects her Autonomic Nervous System which controls all involuntary actions in her body, ie. blood pressure, heart rate, organ function and placement etc. This awful syndrome is Dysautonomia - POTS (DysautonomiaInternational.org ). The various health issues she has been struggling with virtually throughout her life, began to make sense by the time she was 14 years old. She also has Ehler’s Danlos Syndrome ( a painful connective tissue disorder which is what holds joints and organs in place); Mast Cell (her body creates too much histamine causing painful hives); Trigonitis (bleeding where the ureter connects to the bladder); and the list goes on and on. She lives in pain everyday of her life which is compounded by nausea and the danger of dehydration, all of which have resulted in many, many, many ER visits and several have turned into hospital stays. When her kidney ruptured the stent usend to treat the condition caused her body to continuously try to reject the foreign material which only exacerbated the experience and pain.
The management of care that we’ve found is stem cell treatment but isn’t approved by the FDA for her diagnosis’s, resulting in the necessity to seek the help of family, friends and compassionate people with a plea for help. The cost to harvest the stem cells and 3 infusions back into McKenna’s body is very expensive at $50,000.
Initial Appointment - $370
Stem Cell Harvest, Lab Work, Surgical Facility - $6,500
3 Infusions - $33,000
1 Additional Infusion after 4-6 months - $11,000
Please dig deep and help McKenna!
DonationsSee top donations
- Ruby Cate
- Nathan McCleskey
- Bonnie Davis
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more