She’s had so many diagnoses but what they’re certain of is ulcerative colitis, generalized paroxysmal Dystonia, and POTS. She’s tried so many medications, some that worked for a while, some that had terrible side effect (sometimes worse than the disease they were treating). She’s tried alternative treatments that have helped but nothing has been able to keep her in remission longer than a couple months. Marijuana has been very helpful but it still has not given her remission.
She miraculously became pregnant during her first remission (she thought she was cured), although they thought that was impossible. Her husband has been keeping up all the bills and working really hard to keep food on the table and the bills paid and doing all the things that she would be doing if she were healthy for too many years. She feels that she had become a huge burden on her husband and my mom, whom have had to miss work to care for way too many times. She could rock this life if she had a chance.
Stem cell therapy has offered a lot of miracles as I’m sure you’ve seen. In the US, you can use your own cells (as adipose or umbilical) to be injected back in with great results for many people, miracles they would say. With Fluoroquinolones (Cipro, Levaquin, Avelox, Factive and too many generics) having caused Jamie’s diseases, they suspect mitochondrial disease is ultimately what she suffers from. Meaning her mitochondrial DNA is damaged and even destroyed in some areas and many feel that using cells from someone with this sort of damage may, at best, be ineffective. Jamie’s friend Amy, an RN with a PHD from UCLA in epidemiology and biostatistics sought to find the place that offers stems cells without using her own cells as she suffers from fluoroquinolone damage as well. She researched the world over and found a place in Cabo San Lucas, Mexico that met all of her very strict criteria. She went for a few weeks with stem cell infusions every day. She has, in the last few months, gone from bedridden to going back to work, living a normal life, and even went hiking over 10 miles and is showing no signs of slowing down. If Jamie can even have half the success that Amy has had with these stem cells, she could get back in the game of living. I want that for her, I want that for Soren. Please share and donate if you can
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If you have any questions about the specifics, you can email Jamie at [email redacted], she'll be happy to answer any and all questions.
This is generalized paroxysmal dystonia, part of one of her attacks:
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