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Stem Cell transplant for mother of four

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This story is personal, devastating and incredibly difficult to write, but I feel this is the last resort. My mother, Jamie, has recently turned 42, she is a mother of 4, and I fear she will not live to see her children graduate. Ten years ago she was diagnosed with a rare auto immune disease called Myasthenia Gravis (MG). Most of the time MG is life alternating, not life threatening. This is not the case for my mother, as she was diagnosed with the "rare aggressive strand". Unfortunately most of the traditional treatments for MG are ineffective on her, or they gave her severe reactions. One treatment (IVIG) gave her meningitis twice. This led to her starting chemo therapy. She gets chemo once every 4-6 weeks, which is not fully covered by insurance because treating MG with this is “experimental”.  She also gets a treatment called "Plasmapheris" twice a week, which she has to travel an hour and a half by public transit (usually alone), as well a blood tranfusion once a week. She has been deteriorating throughout the years due to high doses of chemo and other treatments. Due to one of her medications she developed osteoporosis and has since broken her back three times. Her spine has collapsed, and her right side has nerve damage which is getting worse. She will soon be mostly paralyzed on that side. She falls all the time now because her leg drags. She isn’t able to use a wheelchair in the home at this time as it isn’t equipped for the wheelchair, but she is in danger every day.  

Unfortunately, there is an urgency. A few months ago she contracted a disease called Clostridium difficile (from the hospital) and it has gotten to the point where it has traveled to her intestines and she must go in for surgery. She has to have her colon removed as well as parts of her intestines. She is no longer able to continue with her traditional treatments, so her MG is getting worse. This is incredibly urgent, as the MG and her multitude of other health issues are destroying her body.

The only chance for a cure for my mother is a stem cell transplant in Chicago, which will cost about 100 000$ for the treatment and 100 000$ for the recovery as well. The success rate of this treatment is in the 90th percentile. If this did not work, she would likely die as that would mean her body rejecting the foreign stem cells, but this is a risk she has been more than willing to take for the past few years. 

Any donation at all will help her. She has to bus alone, twice a week, an hour and a half to Toronto for treatments. Even if we don't reach the ultimate goal (which seems unlikely as 200 000$ is a ginormous amount of money), any donation will still help. Our house we live in is currently ill-equipped to help support my mother. She has fallen several times trying to get to the bathroom, or on the stairs. I have attached these photos of the damage of her most recent fall.

If we never made enough for the surgery, these are the things we could still use the money for:
- to put a wheel chair lift on her vehicle
- to get her proper rides to and from the hospital
- upgrade the bathroom with appropriate safety measures (a tub with a door/seat, etc.)
- railings and lifts
- a hospital bed (she currently sleeps on a lazy boy chair in the living room)
- a proper room
- a ramp into the home

Thank you for taking the time to read this, this is the hardest thing I have ever written, and I had to swallow my pride to do this. I am very private and sharing the short version of this story has been extremely challenging. My mom is the most amazing person I know, and I know everyone says that. But she carries around Tim Hortons gift cards, to give to people who look like they need it or help her. She has befriended many bus drivers in Toronto and almost everyone she encounters has something amazing to say about her. Once I was sent to pick up her medicine and when I told the pharmacist I was there picking up medicine for my mom, the pharmacist took my hand and told me how she loved my mom and she was the kindest and most brave person she knew. Another time, while she was getting chemo, a young teenaged boy in the room with her got bad news about his treatment plan and was visibly upset. She then called over a nurse, gave the nurse some money, and asked if she would go get a gift for the boy. She insisted the nurse not tell the boy who it was, but just give it to him. The boy asked who sent it, and then wept and said to the room, "I appreciate you, whoever you are, thank you". 
My mother would never tell anyone these stories, but she is someone who is so compassionate, caring, and GOOD. The best role model to grow up under, and the best mother. No matter how sick she was, she always tried to have dinner on the table, she always let us do sports even though it was tough financially (sometimes she had to sacrifice getting chemo for it), and has always been there for us.
Any donation at all has my deepest gratitude, more than words could ever say.
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    Co-organizers (2)

    Celeste Mammoliti
    Organizer
    Ariss, ON
    Kathy Rajch
    Co-organizer

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