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Stem Cell Therapy for Dean

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About 14 years ago after 2 years of test I went back to my neurologist at the UW. He told me that they discovered what was causing my issues and diagnosed me with Adrenomyeloneuropathy. I had no clue what it was or what to expect. He explained that it was a demylenating nerve disease. Not only was it going to kill my nerves but also effect other parts of my body, Adreno glands, pituitary, and others. He told me with this disease there is a 90% mortality rate and that I would be confined to a wheelchair. He also told me I had to quit my job and go on disability because if I didnt it would make the disease progress faster. It was a very bad day. I was told I had a 90% chance of dying early, I had to give up my career and my health was going to deteriorate rapidly. On top of it I was a single Dad of two boys almost 3 and 13 years old. My first thought was my boys and what's going to happen to them. A year later I gave in and applied for disability and was approved in 3 weeks (a record time I've heard). I did the doctor thing for awhile and still have numerous doctor appointments but I've found that I feel my best taking care of myself as much as possible. I've researched so much about this disease I tell most doctors about it and what I am doing to try to keep myself going. As I mentioned I've done years of research about this disease and others that may have similar but not the same symptoms. I've learned by trial and error what makes me feel better and what makes me feel worse (sometimes super bad) by experimenting with different foods, supplements and vitamins. Then I heard about stem cells and the things they are doing with them and how they work inside the body. I also heard of one man with AMN that had done the stem cell therapy and was having great results. That was it for me I decided I had to do it also and back to the experiments to see what improvement I will get. I had to at this point there is nothing else to try. The problem is the cost it's very expensive and I'm on a disability income. I dont have the option to work extra hours or get a second job to pay for this if I did I would in a heartbeat. This is the reason for my GoFundMe. After many generous donations I was halfway to my goal but felt it was something I needed to do as soon as possible and took out a loan to cover the rest. I was telling a friend what I was going to do but couldn't afford it and she said "You cant afford not to do this". She was right! Everyday I don't do something about it is another day I get closer to very bad things happening to me. Today 9/25/2018 is the 2 week anniversary of my new beginning and I'm feeling small changes already. This isn't a one time thing I will need to do the stem cell therapy again in about 8 months and after that maybe again but this is my life I'm talking about and think it is important. I would like to thank all of you who have donated through GoFundMe, PayPal and to me personally and can never thank you enough. I am still taking donations if you can find it in your heart to help me out. The struggle is difficult but what kind if a person would I be if I gave in and stopped fighting. If you made it to this sentence. Thank you for reading the whole thing I know it was long but wanted to explain how important this is. *Disclaimer: The stem cells used for this therapy are NOT derived from embryos, fetuses or any unborn children. I would not be ok with that.

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Donations 

  • Julie Skowronski
    • $40 
    • 5 yrs
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Organizer

Dean Gilbert
Organizer
San Tan Valley, AZ

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